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Panel: Stakeholder Collaborations Essential to Making Things Happen in Rare Disease Space

Patients and patient organizations, which have detailed insights in the natural history of a rare disease, should be integral, too.

United statesMichele rheeJocelyn duffKatherine beaversonBo bigelowClinical trials transformation initiativeApellis pharmaceuticalsPatient focused medicines developmentRare diseaseBiotech week bostonRare disease film festivalJulia carpenter conlinFocused medicines developmentTakeholder collaborations essential to making things happen in rare disease space

Key barriers to effective patient engagement in pharma, and how to fix them: Making engagement processes more patient friendly

- PMLiVE

United kingdomRita reisHead of communicationsAdvice bureau or disability rights united kingdomPatient focused medicines developmentPatient centricityEngagement conferenceReimagine patient centricityFocused medicines developmentBenefits advice bureauDisability rights united kingdom

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