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Community Scoop » UN Event For Rare Disorder SMA: Leading Advocates Urge Government To Act For Those Living With The Condition In NZ

Scoop Community provides New Zealand Community news and views

New yorkUnited statesNew zealandLisa fosterFiona tolichSergiy kyslytsyaHelen clarkMac reynoldsPartnership for maternalHealth careNational frameworksChild healthUnited nationsPress releaseRare disordersSpinal muscular atrophy

Rare Disorders NZ invited to present at an international United Nations event

Rare Disorders NZ and Patient Voice Aotearoa will be presenting at an international virtual event with high level stakeholders to bring attention to spinal muscular atrophy (SMA) – a rare, inherited neuromuscular disease

New yorkUnited statesNew zealandNew zealandersNew zealanderLisa fosterFiona tolichHelen clarkPermanent mission of ukraineUnited nationsRare disordersPatient voice aotearoaPermanent missionUnited nations general assemblyExecutive boardChief executive

MOH confirms another possible vaccine mistake

MOH confirms another possible vaccine mistake
tvnz.co.nz - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from tvnz.co.nz Daily Mail and Mail on Sunday newspapers.

New zealand generalNew zealandFiona tolichCharlie dreaverMorag mcdowellJo gibbsHighbrook vaccination centreHighbrook vaccination centre in aucklandMinistry of healthDisability commissioner morag mcdowell

Covid-19: Ministry of Health confirms another possible vaccine mistake

Covid-19: Ministry of Health confirms another possible vaccine mistake
rnz.co.nz - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from rnz.co.nz Daily Mail and Mail on Sunday newspapers.

United statesNew yorkFiona tolichMorag mcdowellJo gibbsHighbrook vaccination centrePadua roman catholic churchHighbrook vaccination centre in aucklandMinistry of healthNew yorkersNew york cityDisability commissioner morag mcdowell

Family says choice is life in Australia or death waiting for Pharmac

Family says choice is life in Australia or death waiting for Pharmac
rnz.co.nz - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from rnz.co.nz Daily Mail and Mail on Sunday newspapers.

New zealandFiona tolichJessica russellGrant robertsonSarah fittPaul huntSpinal muscular atrophyHuman rights commissionerHuman rights commissioner paul huntOfficial informationStarship childrenPatient voiceHuman rightsMinister grant robertsonWellbeing budgetLiving standards framework