of genetic conditions. # nala, charlie, nala, charlie shaw. this is the shaw family, from northumberland. mum and dad, ally and jake, and their two daughters, nala and teddi. i ve always said nala saved teddi s life. and that s how i ve wanted to think about it. whee! the family are living under the shadow of a devastating disease a rare life limiting genetic disorder called mld which is already taking a toll on nala. days out like this are one way the family are building happy memories with their girls. and there s one sure way to please any toddler. more cake? yes, more cake! nala was once just as lively and active as her younger sister. she was such a cheeky little character. she was always, like, kind of, singing, dancing, spinning around everywhere, always laughing. she was just a cheeky little girl. very theatrical, wasn t she? everything was all. every morning, i would do a little instagram video. yay! and everybody would message and just say how she brightens thei
up for this mexican. . . pivot. pivot. shut up. shut up. i feel like we get to know these sitcom crashes, they re your friends. i don t think it s going to pivot anymore. you think. they were purely selfish, and purely immature. are you still master of your domain. i m queen of the castle. you hope you ll have those kinds of relationships in your life. tonight is about celebrating enduring bond as families, nay, family. good to see you too, girl, where are going? carnival. your friends sometimes is more family than the people you re related to. something is bothering you. never been happier. trying to make you a way in the world having a safe harbor where everybody knows your name. i m out. what? i m out of the contest. ugly naked guy having thanksgiving dinner with ugly naked gall. friend or seinfeld you want me to choose. i can t answer that. challenge accepted. a contest? seinfeld will win. seinfeld was smart. seinfeld was a bril
arrested following clashes with police outside a hotel providing refuge for asylum seekers in merseyside in northwest england. you re watching bbc news. now its time for sportsday. hello, and welcome to sportsday. i m hugh ferris. 0ur headlines this evening putting themselves into six nations pole position. ireland win what could be an early tournament decider against france. it s been a rare thing this season. but now it s twice in a row. leaders arsenal drop points in the premier league england off the mark as they beat west indies by seven wickets in the women s t20 world cup opener. also coming up in the programme and from the streets of scotland to the red carpet in hollywood we ll being you the remarkable story of how this triathlete helped make an oscar nominated movie. hello and welcome to sportsday. a match between the top two teams in the world to potentially decide the northern hemisphere s big rugby tournament. and it was ireland. top of the pile in the rank
found in the river wyre close to where she disappeared. the mother of two was last seen walking her dog late last month. now on bbc news, bittersweet medicine. this is a story of hope. how a new treatment is stopping a devastating genetic disease in its tracks. we have had almost nothing to offer families with this condition for decades. bringing a new medicine to the world that can potentially cure these devastating diseases is incredibly satisfying and rewarding. how britain s most expensive medicine is giving children their lives back. it s amazing. i mean, she s such a little character and for her to receive this treatment is just an absolute blessing. they re literally walking, running miracles, you know? they shouldn t be here. i m fergus walsh, the bbc s medical editor. i ve been following the first patient treated by the nhs with this life saving drug, and meeting families affected by one of the rarest and cruellest of genetic conditions. # nala, charlie, nala, char