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Harmony Names Patients and Progress at the Heart Awardees

Harmony Biosciences selected the latest round of nonprofit organizations for its Patients at the Heart and Progress at the Heart awards.

United statesPlaticamos saludKathryn schubertMichael grandnerNuestro suenoPlaticamos suenoSociety for women health researchUniversity of arizonaHealth care equity programAmerican academy of neurologyGroups for the developmentUniversity of utahMariposa community health centerDrug developmentDrug administrationPublication dissemination

The Galactosemia Foundation and National Organization for Rare Disorders (NORD) Jointly Publish First Voice of the Patient Report to Help Inform the FDA and Researchers

The Galactosemia Foundation and National Organization for Rare Disorders (NORD) Jointly Publish First Voice of the Patient Report to Help Inform the FDA and Researchers
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United statesNicole casalePeterl saltonstallGalactosemia foundationDrug administrationNational organization for rare disordersGalactosemia foundation incDrug developmentNational organizationRare disordersExternally led patient focused drug developmentRare disease

Lack of patient epinephrine access, education creates need for outreach

LOUISVILLE, Ky. — Only about half of all adults with food allergies have immediate access to epinephrine, according to a study presented at the American College of Asthma & Immunology Annual Scientific Meeting.Also, about one-third of the respondents believed that epinephrine autoinjectors (EAIs) could cause life-threatening side effects, the researchers wrote, adding that these gaps in

United statesKristen dowdErin malawerByrichard gawelDrug developmentScientific meetingFood allergy collaborativeAmerican collegeImmunology annual scientificExternally led patient focused drug developmentFood allergyNative american

Cancer Support Community Releases Report on Cancer Cachexia

Cancer Support Community Releases Report on Cancer Cachexia
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United statesNathalie casthely cancer support communityGilda clubDrug administrationLed patient focused drug development meetingPancreatic cancer action network panCancer policy instituteLungevity foundationInstitute for excellenceTraining instituteCholangiocarcinoma foundationCancer support communityWall streetCancer cachexia voicePatient reportExternally led patient focused drug development

Cancer Support Community Releases Report on Cancer

Report Highlights Unmet Medical Needs of Patients Facing Unintentional Weight Loss, Muscle Weakness, and Fatigue.

United statesLungevity foundationCholangiocarcinoma foundationCancer support communityDrug administrationLed patient focused drug development meetingPancreatic cancer action network panCancer cachexia voicePatient reportExternally led patient focused drug developmentRoche diagnosticsPancreatic cancer action networkCancer support communityCancer cachexia