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I d love if there was more understanding of rare diseases – The Irish Times

I am Number 17 is a campaign to raise awareness and for early diagnosis for rare disease

County fingalUnited statesUnited kingdomBrian mcdonaghCarol molloyVicky mcgrathNiamh whysallDanny molloyBettina cartyEileen treacyBrian deeganLucy beckwithKasia whysallIt is health seasonUniversity of galwayChildren health ireland at crumlin

Pharmaceutical reform poses challenges for innovation in undiagnosed diseases

Pharmaceutical reform poses challenges for innovation in undiagnosed diseases
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United statesSimone boselliBeatriz peralesEuropean unionEuropean medicines agencyEuropean commissionEuropean parliament public health committeeSpanish federation for rare diseasesEuropean parliamentEuropean federation of pharmaceutical industriesEuropean organisation for rare diseasesSpanish federationRare diseasesWaiting timeInnovative therapieEastern european

COST Connect on advancing mental health research through networking and collaboration

Mental health is a complex and multifaceted field, encompassing diverse domains such as psychology, neuroscience, psychiatry, sociology, and public health. Mental health challenges are on the rise, posing significant burdens on individuals, families, and societies worldwide. There is an urgent need for innovative approaches and solutions. It becomes crucial to explore the pivotal role of networking researchers in advancing our understanding of mental health-related topics.

France generalUrsula trummerMatt bolz johnsonJean grassmeijerBrian cahillResearcher mental health observatoryEuropean researcher network working on second victimsMental health researchEuropean family support network eurofamEuropean parliament onEuropean brain councilResearch european allianceCouncil of national alliancesCentre for healthEuropean organisation for rare diseasesEarly career investigators

Rocket Pharma COO On Observing Rare Disease Day, And Why It Deserves US Attention

Feb. 28 is Rare Disease Day. It's meant to observe the more than 400 million people globally — 50% of them children — that are aff.

United statesKinnari patelRocket pharmaceuticals announces proposed public offeringRocket pharmaceuticals incEuropean organisation for rare diseasesRare diseaseCystic fibrosisRocket pharmaceuticalsNew jersey basedRocket pharmaShares of its commonRare disease dayEuropean organisationWhile rare disease dayEmpire state buildingTime square

Cytokinetics Joins Global Initiative to Recognize International Rare Disease Day

Cytokinetics Joins Global Initiative to Recognize International Rare Disease Day
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United statesCytokinetics diane weiserseniorRoberti blumCytokinetics incorporatedNational organization for rare disordersNational institutes of healthDrug administrationExchange commissionCorporate communicationsEuropean medicines agencyEuropean organisation for rare diseasesWall streetEuropean organisationRare diseasesNational organizationRare disorders