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Congress Incentivizes Rare Disease Research Big Pharma Exploits It – Mother Jones

Loopholes in the Orphan Drug Act serve drug companies, not patients.

United statesSteven pearsonEli lillyEric sidSneha daveScott glovskyNational centerKaiser health newsBespoke gene therapy consortiumTranslational sciencesInstitute for clinicalUs congressNational institutes of healthOrphan drug actEconomic reviewJazz pharmaceutical

Top 10 Takeaways from the 2023 RARE Advocacy Summit

Top 10 Takeaways from the 2023 RARE Advocacy Summit
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

Kendall davisEric sidJonil rutterDaniel defabioCaroline cheung yiuRonda thoringtonSusannah foxCommunity engagementTranslational sciencesLed research collaborative rebel healthNational institutes of health finding your flockDigital health expertRyan foundation for rare disease researchNational institutes of healthNational centerGlobal genes

Collaboration Key Theme for RARE Advocacy Summit Sessions and Networking Opportunities

Collaboration Key Theme for RARE Advocacy Summit Sessions and Networking Opportunities
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

United statesSan diegoScott demarestRyan colburnMelissa hiocoCarole bakhosYssa dewoodySravanthi mekaKarmen trzupekAdam staffaroniSusannah foxEric sidA researchDisease community consortiumsPompe consortiumPlenary panel