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Teacher turned TikTok star feels like afterthought in society due to rare condition

Internet sensation Amy Pohl has been through some incredibly dark times after she suddenly fell gravely ill and her life changed forever. At one point she was in 'so much pain' she didn't think it would ever get any better'

United kingdomCounty durhamAmy pohlComplex regional pain syndromeEhlers danlos syndromesFunctional neurological disorderComplex regional pain

What is Ehlers-Danlos syndrome? These Rochester women want you to know about it

Madelyn Saner and Lexi Dunn both spent years seeking a diagnosis that explained their symptoms. Now, they're raising awareness about Ehlers-Danlos syndrome locally and over social media.

Plummer buildingUnited statesNew yorkLexi dunnKim nortonTechnical collegeShea rochester communityMadelyn sanerRochester mayor kim nortonEhlers danlos syndromesHypermobility spectrum disorders awareness monthHypermobility spectrum disordersMayo clinicMinnesota state capitolAdvocacy dayRochester community

Lena Dunham speaks out about Hypermobile Ehlers-Danlos syndrome

Lena Dunham speaks out about Hypermobile Ehlers-Danlos syndrome
dailymail.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from dailymail.co.uk Daily Mail and Mail on Sunday newspapers.

Hypermobile ehler danlosHypermobile ehlers danlosLena dunhamHypermobile ehlers danosRare diseases information centerEhlers danlos syndromesHypermobility spectrum disorders awarenessRare diseases informationHypermobile ehler danlos syndrome

SEDSConnective celebrates £20k National Lottery funding to sponsor mental health projects for the neurodivergent community

Local community group, SEDSConnective, is today celebrating after being awarded £20,000 in National Lottery funding to support its work with a mental he.

Northern irelandUnited kingdomEast sussexNational lottery community fundNational lotteryJane greenEhlers danlos syndromesHypermobility spectrum disordersPaediatric generalised joint hypermobilityUnited kingdom wideThe national lotteryYmptomatic hypermobilityEhlers danlos syndromes

Metrodora Foundation Announces New Scientific Advisory Board

Metrodora Foundation Announces New Scientific Advisory Board

United kingdomUnited statesEmory universitySteven hicksSteve gardnerRohit guptaPeter roweSteve hicksMark bouzykHolden maeckerEmory biomarker service centerSpectrum solutionsJohns hopkins university school of medicinePennsylvania state university college of medicineWinship cancer institute of emory universityResearch shared core resources