maybe had lost sight of once eden was diagnosed. and eden will ultimately help many children she will never even meet. eden is really here to save people s lives. and she does that every day. and if that s what she s here to do, there is no more noble a life than that. i love you. oh, my goodness, what was that? now, for these parents it seems to make sense but is more testing something everyone should be doing? joining me to talk about that is genetic expert dr. michael gambela, thank you for joining us. most people think of genetic testing after the baby is born, they get the heel prick and they are testing for 30 different diseases. what we re talking about here is actually before they ever get pregnant, correct? correct. they should be getting tested for certain diseases at that point you re saying?
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carriers of a disease they have a 25% of passing it on to their child, but the problem is there s no standardized screening, so they turned their fate into a mission. so, instead of asking why us, we decided to make sure that the tragedy of eden s story doesn t happen to another family. their work has grown into a new web-based education and screening program for 19 genetic diseases that are more common among a certain type of jews. established at emory university it is called j-screen and it allows visitors to request an at-home screening kit online and a genetic counselor delivers the results. last year eden became a big sister when the goulds added another daughter to their family. she is perfectly healthy. we believed in life again and that we had hope and we knew there would be joy and good times. i think she helped us see the world in a different way that we