out for more time. we re not sure how effective it is because, again, it s too small. we have said that we will accept the possible risk that this drug isn t as effective as we think it is five years down the line or some kind of side effect develops. but in the meantime, while they are not sure and while they are collecting more data, our kids are dying. reporter: frustrated with the process, parents like jen have become vocal advocates, pushing for this drug s approval. it s become a contest of the emotional stories of these children and parents versus the very drug approval process itself. i want to know that they understand what children go through in a clinical trial. reporter: finding therapies for rare or orphan diseases like duchenne can be difficult because of the small number of patients and the extreme progression of the disease. by definition, rare diseases have fewer than 200,000 cases in the country. in the case of duchenne, there are just 15,000. rare disease i
small. we have said that we will accept the possible risk that this drug isn t as effective as we think it is five years down the line or some kind of side effect develops. but in the meantime, while they are not sure and while they are collecting more data, our kids are dying. frustrated with the process, parents like jen have become vocal advocates, pushing for this drug s approval. it s become a contest of the emotional stories of these children and parents versus the very drug approval process itself. i want to know that they understand what children go through in a clinical trial. finding therapies for rare or orphan diseases like duchenne can be difficult because of the small number of patients and the extreme progression of the disease. by definition, rare diseases have fewer than 2,000 cases in the country. in the case of duchenne, there are just 15,000. rare disease is such that if we don t get our children in clinical trials and get these drug out quickly, there s n
can do that. well, joe trippi is a former campaign manager for howard dean and is a fox news contributor. here we go, again. it s not yochltd it s asterisk. this isn t something people are like whatever. they care, it s their doctor. the number of times that we ve have seen material representations upon which the american public relied collapsed after the fact is becoming disturbing. am i wrong? no. look. the fact is that president did say you goat keep your doctor. we know that is not going to happen for some people. perhaps you know for, 5 million. i don t know what the number s
if shouldn t be playing in national championship game. he was talking in that interview about how they ve got to keep their eye on the ball and focus on the game this, is one of the most serious al gayings of crime there is. if there is any truth to that, the school shouldn t let him play. last subject. i know. prosecutor says evidence isn t there. they can t convict him but that is it. there is a new opinion piece in the washington post talking about how our christmas cards have gotten too, now we go on shutter fly take a picture of the kids say these are the addresses there is no personal note this, is something my mother rips on me and doug for every year. i say to her we sent something. it s better than nothing. exactly. that is how i feel. in the age of facebook, everyone knowing what each other is doing and text i feel like you sdroent