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Experimental gene therapy points to cure for rare immune disease

An experimental gene therapy developed to treat children born with a rare immunodeficiency disease has demonstrated extraordinary efficacy according to a new long-term follow-up study published in the New England Journal of Medicine.

Experts push for national screening program of bubble boy disease

  TORONTO Alyssa Simaganis had a good pregnancy, and when her daughter Kianna was born in 2012, she was “perfect.” But things took a frightening and unexpected turn three months later. “She ended up getting pneumonia. And then after that she got septic. And then after that she got meningitis. And then she had a massive stroke,” Simaganis, 30, told CTV National News. Kianna was sent to a Saskatoon hospital, fighting for her life. “She ended up in ICU, on a ventilator. She was intubated for about two weeks… I think that was the hardest part of it all was seeing her in an induced coma, not being able to carry her. Her eyes weren t open,” Simaganis said.

Hong Kong Ballet s artistic director Septime Webre followed his sister to ballet school and never looked back

Hong Kong Ballet’s artistic director Septime Webre followed his sister to ballet school and never looked back Artistic Director of the Hong Kong Ballet, Septime Webre, at the Hong Kong Cultural Centre, in Tsim Sha Tsui. Photo: SCMP / Xiaomei Chen The seventh son: I m the seventh son in a family of eight brothers and one sister. My six older brothers were all born and brought up in Cuba. My mother was Cuban and my father American. They left Cuba during the revolution and I was born in the United States soon after they arrived in the early 1960s. As a small child, we moved to the Bahamas and my first memories are of a beautiful island with a gorgeous white beach and blue water. There were only four kids in my class at school. My dad had a sugar plantation in Cuba and was an engineer who designed sugar mills.

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