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Limb-Girdle Muscular Dystrophy Leaders Advance Collaborative Dialogue to Accelerate Drug Development to Address the Urgent Unmet Need in Limb-Girdle Muscular Dystrophy

/PRNewswire/ On February 8, 2024, The Speak Foundation, a patient-led 501(c)(3) organization for Limb-Girdle Muscular Dystrophy (LGMD), convened a.

United statesDouglas sprouleMichelle campbellMatthew wicklundJannie kennedyKatherine mathewsKathryn bryant knudsonNicholas johnsonPeter marksLouise rodino klapacNicole verdunLindsay alfanoPeter kangPeter steinJames signorovitchJerryr mendell

New Voice of the Patient Report Highlights Unmet Medical Needs of Six Subtypes of Limb-Girdle Muscular Dystrophy

/PRNewswire/ Today the Limb-Girdle Muscular Dystrophy (LGMD) Coalition, a partnership of six LGMD patient organizations, released the Voice of the Patient.

Kathryn bryantSpeak foundationD foundationDrug administrationCoalition to cure calpainPeter foundationMccoll lockwood laboratory for muscular dystrophy researchLed patient focused drug development meetingLimb girdle muscular dystrophyPrescription drug user fee actCure calpainMccoll lockwood laboratoryMuscular dystrophy researchDirector jenniferSarepta therapeuticsEdgewise therapeutics

Limb-Girdle Muscular Dystrophy Coalition to Host Externally-Led Drug Development Meeting

/PRNewswire/ On September 23, 2022 at 10am EDT, a coalition of limb-girdle muscular dystrophy (LGMD) nonprofit organizations will lead an Externally-Led.

Muscular dystrophy associationSpeak foundationCoalition to cure calpainD foundationDrug administrationLed patient focused drug development meetingMccoll lockwood laboratory for muscular dystrophy researchAwareness foundationPeter foundationPrescription drug user fee actCure calpainMccoll lockwood laboratoryMuscular dystrophy researchEdgewise therapeuticsSarepta therapeuticsAdvocacy partners

The LGMD Community Celebrates Adoption of ICD-10 Diagnostic Codes for LGMD

The implementation of these ICD-10 codes represents a culmination of two-years of collaborative efforts within the LGMD patient, clinical, and res.

United statesNicholas johnsonPaul melmeyerMuscular dystrophy associationSpeak foundationCoalition to cure calpainDepartment of neurologyVirginia commonwealth university school of medicineJain foundationAwareness foundationPeter foundationResearch fundCure calpainVice presidentPublic policyVice chair

The LGMD Community Celebrates Adoption of ICD-10 Diagnostic Codes for LGMD

The implementation of these ICD-10 codes represents a culmination of two-years of collaborative efforts within the LGMD patient, clinical, and research.

United statesNicholas johnsonPaul melmeyerMuscular dystrophy associationSpeak foundationCoalition to cure calpainDepartment of neurologyVirginia commonwealth university school of medicineJain foundationAwareness foundationPeter foundationResearch fundCure calpainVice presidentPublic policyVice chair

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