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Civil Georgia | Parents of Children with Achondroplasia Demand Definitive Date for Drug Treatment

Civil Georgia | Parents of Children with Achondroplasia Demand Definitive Date for Drug Treatment
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United statesMakuna gochiashviliIrakli garibashviliGuidelines councilMinistry of healthCoordination council for rare diseasesCouncil for rare diseasesNational council of guidelinesGeorgian ministry of healthGeorgian ministryHealth ministry has no plansImport drugsNational councilCoordination councilRare diseasesCoordinating council

Parents of Children Diagnosed with Achondroplasia End Round-the-Clock Protests

After 19 days of protests near the government administration building parents of children diagnosed with achondroplasia announced of the ending of the

United statesSilviu domenteMinistry of healthPublic defender officeWorld health organizationUnited nations children fundHealth tamar gabuniaAffairs of georgiaCoordination council for rare diseasesSocial affairsCoordination councilRare diseasesFirst deputy ministerDeputy ministerGeorgia silviu domenteUnited nations children

Parents of Children with Achondroplasia Demand Meeting with Prime Minister

On April 21, parents of children with achondroplasia, as well as people who have joined them in solidarity, organized another protest in front of the

Czech republicUnited statesZurab azarashviliKeti begiashviliIrakli garibashviliCoordination council for rare diseasesWorld health organizationGovernment administrationMinistry of healthHealth committeeGeorgian healthGeorgian health minister zurab azarashviliPrime ministerHealth ministry has no plansImport drugsCoordination council