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Ontario, Canada Dr. Wong-Rieger received her Ph.D. in psychology from McGill University and was formerly a professor at the University of Windsor, Canada. She is chair of Rare Diseases International, president of the Asia Pacific Alliance of Rare Disease Organisations, treasurer of the United Nations Nongovernmental Committee for Rare Diseases, chair of the Patient Advocacy Constituent Committee of the International Rare Diseases Research Consortium, patient advisor to the Asia-Pacific Economic Cooperation (APEC) Rare Disease Network, a member of the editorial board of The Patient: Patient-Centered Outcomes Research, a member of the Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease, and former cochair of the Health Technology Assessment International Interest Group for Patient and Citizen Involvement. In Canada, she is president and CEO of the Canadian Organization for Rare Disorders, chair of the Consumer Advocare Network, president and CEO of the

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