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Enhancing management of rare diseases - BusinessWorld Online

Enhancing management of rare diseases - BusinessWorld Online
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The philippinesTeodorob padillaNational institutes of healthHealthcare association of the philippinesNewborn screening programCommittee for rare diseasesDepartment of health doNational rare disease weekSustainable development goals sdgsNational rare diseaseNational institutesRepublic actRare diseases actRare disease registrySustainable development goalsHealthcare association

Burj Khalifa lights up for Rare Disease Day 2022

Families from across the UAE marked Rare Disease Day 2022 with a lighting ceremony on Burj Khalifa to build awareness of rare diseases and their impact on patients a.

United arab emiratesBurj khalifaKarim smairaKamel ghammachiLynn barghout jafarCommittee for rare diseasesAssembly resolutionLoulou foundationHigh hopes pediatric therapy centerCommunity development authorityUnited nationsWorld health organisationRare disease dayDisease dayDisease day dubaiHigh hopes

First-ever United Nations Resolution to Increase Visibility

A global grassroots campaign led by persons living with a rare disease and their families has succeeded in securing the adoption of the first-ever UN.

United statesBruxelles capitaleAnders olausonFlaminia macchiaPeter saltonstallMaria bassolsCommittee for rare diseasesUn third committeeNational organization for rare disordersRare diseases internationalWorld health organizationCore group of member statesRare diseases international executive directorUn sustainable development goals sdgsPersons livingRare disease