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By Inside Edition Staff
Updated: 9:33 AM PST, January 26, 2021
Inside Edition spoke to two moms whose daughters have the condition, which many kids grow out of during puberty.
Taylor and Shilah, 4 and 10, are two little girls who were born with a rare genetic condition known as Uncombable Hair Syndrome. There are only about 100 documented cases of it around the world.
Instead of growing downward, the hair grows out in multiple directions. And according to their mothers, it takes a lot of work to comb through it.
“It is very fragile, so what ends up happening is that we see a lot of breakage,” Taylor’s mom told Inside Edition. “We deal with matting all the time. It’s something we have to keep on top of. We have to brush her hair multiple times a day.”