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The family of a county Meath man confined to an ICU bed with Motor Neurone Disease for over a year have spoken of their heartache at how health chiefs have been unable to tailor a specialised care programme to allow him spend his last days at home.

Anthony allenMary butlerCatherine darcyDarren orourkeJunior healthCavan general hospitalCatherined arcyIrish independentHealth minister mary butler