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Transcripts for BBCNEWS BBC News 20240604 09:46:00

families of people with complex medical needs, are warning the nhs system that funds their home care, is struggling to provide adequate support. the bbc has been following 24 year old declan spencerfor ten months witnessing how the repeated breakdown of his care, has left his mother having to provide it by herself. our social affairs editor, alison holt has their story. been doing this since he was a child, you know. and i m burning out, but no one actually seems to care. this is the reality of home life for 24 year old declan and his mother, alex. he has duchenne muscular dystrophy a muscle wasting condition. day and night are filled with medication, ventilator checks, physio and the care that keeps him alive. it s made, like, my chest and my lungs weak and my heart. so i have to wear. more often i have to wear my ventilator now. i m in the middle of something.

People
Bbc
Support
Declan-spencerfor
Local-nhs
Care
Needs
System
Home-care
Families
Breakdown
24

Transcripts for BBCNEWS BBC News 20240604 12:48:00

degree and that the halifax says means that the housing market in general has been pretty resilient, despite pretty tough wider economic conditions. that is one to watch, whether there is a change in trend there are a little bit of first time buyers still active but looking for something a bit smaller, maybe moving areas to somewhere a bit cheaper. moving areas to somewhere a bit chea er. ., ~ moving areas to somewhere a bit chea er. ., ,, , ., families of people with complex medical needs are warning the nhs system that funds their home care is struggling to provide adequate support. the bbc has been following 24 year old declan spencer for ten months, witnessing how the repeated breakdown of his care has left his mother having to provide it by herself 2a hours a day. 0ur social affairs editor, alison holt, has their story. been doing this since he was a child, you know? and i m burning out,

Housing-market
Halifax
Degree
Change
Conditions
General
Trend
One
People
Buyers
Areas
Bit

Transcripts for BBCNEWS Breakfast 20240604 06:16:00

left his mother having to provide it by herself 24 hours a day. our social affairs editor, alison holt has their story. been doing this since he was a child, you know. and i m burning out, but no one actually seems to care. this is the reality of home life for 24 year old declan and his mother, alex. he has duchenne muscular dystrophy a muscle wasting condition. day and night are filled with medication, ventilator checks, physio and the care that keeps him alive. it s made, like, my chest and my lungs weak and my heart. so i have to wear. more often i have to wear my ventilator now. i m in the middle of something. they also face a constant struggle to find care staff to help. alex has been keeping a video diary for us since last october. i ve been looking after derek all day because he s still getting over pneumonia.

Care
Child
Alex
Story
Alison-holt
Burning-out
24
One
Life
Declan-spencerfor
Home
Condition

New Irish Songs To Hear This Week

Listen to some of our favourite new Irish tracks from the week below, featuring Galway indie, Dublin hip-hop and pop from every corner of the country.

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County-fingal
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United-kingdom
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