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Rare Patients Learn to Make Their Voices Heard
Rare Patients Learn to Make Their Voices Heard
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United states
Capitol hill
District of columbia
Daniel levine
Adam smith
Markwayne mullin
Ehlers danlos
Britta dornan
Ronald reagan
Taylor hiddle
Kelly seltzer doyle
Sarah tompkins
Everylife foundation for rare diseases
Drug administration safety
Everylife foundation
Access to genetic counselor services
Publication Finds that Modernization of U S Newborn Screening System is Necessary, Calls for Change
/PRNewswire/ Last week, JAMA Network Open published Expert Evaluation of Strategies to Modernize Newborn Screening in the United States. This.
United states
Jannie kennedy
Don bailey
Britta dornan
Everylife foundation for rare diseases
Everylife foundation
Sarepta therapeutics inc
Biomarin pharmaceutical inc
Expert evaluation
Modernize newborn screening
Rare diseases
Orchard therapeutics
Sarepta therapeutics
Travere therapeutics
Distinguished fellow
Patient engagement
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