Один из тысячи детей в мире рождается с патологией нервной трубки, известной как spina bifida. В России статистики у этой болезни нет, но за пять лет у благотворительного фонда «Спина Бифида» появилось более 1 тыс. подопечных. Зачем в стране нужна госпрограмма по обогащению продуктов питания фолиевой кислотой, чем грозит отмена третьего обязательного скрининга беременных, как нужно реформировать школу, чтобы она была доступной для детей с инвалидностью, почему пациентов с болезнью spina bifida необходимо везти из регионов на операции в Москву и что б�
for the masses they now need to think in smaller numbers bringing together diagnoses research and treatment options to become service providers for patients like lisa. here s something else you can say modern health care for because of prenatal diagnoses fewer people being born with disabilities sounds like great but this next guy has mixed feelings. with spinal bifida he wants to see inclusion rather than selection let s hear what he has to say. when i m with a model i once asked my mother what would have happened had she known about my disability and whether she might have had an abortion she started crying.
is something else you can thank health care for because of prenatal diagnoses fewer people being born with disabilities. but this guy has mixed feelings. with spinal bifida he wants to see inclusion rather than selection let s hear what he has to say. well i once asked my mother what would have happened had she known about my disability and whether she might have had an abortion she started crying. soon after i was born it was clear that i had a neural tube defects what s called spinal bifida. or that meant i had various difficulties especially when it came to walking on by debbie. another common
ireland have to travel abroad for abortions went to meet one of those women. in a loving mother that s what jennifer ryan always hoped to be six years ago she was pregnant for the second time it seemed like a normal pregnancy until a routine scan in the twenty second week brought jennifer s world crashing down she can still remember the doctor s exact words. oh no she was. your baby has a lot of problems and she has a very severe form a spinal bifida starting on her and her shoulder blades and she won t be able to survive with us and on top of the. kidneys and the severity of the spinal bifida cause a lot of damage from brain your baby is incompatible with life. jennifer decided she wanted to spare her baby any pain and have an abortion what happened next was almost as traumatic she and her husband had to hastily arrange a trip to
your baby has a lot of problems and she has a very severe form of spinal bifida starting on her and her shoulder blades and she won t be able to survive with us on top of the. kidneys and the severity of the spinal bifida cause a lot of damage from brain your baby is incompatible with life jennifer decided she wanted to spare her baby any pain and have an abortion what happened next was almost as traumatic she and her husband had to hastily arrange a trip to a clinic in liverpool because doctors an island couldn t help. are you ready. they couldn t talk to you about it over here that we got the details of liver promise on a scrap of paper you know we had to ring ourselves they couldn t do any other for us. just you know like you were just totally alone. they took