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Heartbroken parents sing to little Scots girl with rare condition in hope she never forgets them

Heartbroken parents sing to little Scots girl with rare condition in hope she never forgets them
dailyrecord.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from dailyrecord.co.uk Daily Mail and Mail on Sunday newspapers.

Bikers and mascot Jeff Da Bear complete Blackpool charity ride for Batten Disease awareness

Bikers and mascot Jeff Da Bear complete Blackpool charity ride for Batten Disease awareness
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Tributes paid to inspirational and unique 12-year-old Highland girl who died following a battle with Batten Disease

Moving tributes have been paid to an "inspirational and unique" 12-year-old who has died following a battle with a rare genetic disease.

Heartbroken mum pays tribute after 12-year-old Blainie dies following battle with rare disease

Heartbroken mum pays tribute after 12-year-old Blainie dies following battle with rare disease
pressandjournal.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from pressandjournal.co.uk Daily Mail and Mail on Sunday newspapers.

Addy Clarke s classmates run their hearts out to help her family

Classmates of Addy Clarke put their best feet forward by doing a mile-long run around their school field to raise money for the charity that is supporting her family. The five-year-old, diagnosed with Batten Disease last year, joined other reception children at Grange Infant School in Stratton in the challenge organised by head teacher Ellie Rushen-Gough to raise awareness of the condition and money for the Batten Disease Family Association. Mum Hayley said: “They wanted to do more even though Ellie has enough on her plate. Addy s disease is constantly changing which is demanding on the school, but they adapt to the changes and make us feel it’s not an issue for them.”

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