the first baby ever to survive this diagnosis. congresswoman jamie butler found out when she was five months pregnant that baby abigail had pott potter s syndrome and had no kidneys and little to no amniotic fluid and the lungs shrink and does not allow the baby to develop. the congresswoman and her husband were stunned? i don t know anything can prepare you for that kind of diagnosis it floored us. on the one hand we re first time parents, excited. we get this news. it was devastating. one of the difficult things was it wasn t there was a slim chance of survival. there is zero chance of survival. every doctor we talked to said experienced kidney doctors said they ve never seen, know of no baby who survived. many women get that news and decide to abort the baby.