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At two months old,
Teera Kamat was diagnosed with spinal muscular atrophy Type 1. This rare genetic disease attacks the baby’s nerves and muscles, and as it progresses, makes it extremely difficult for the child to carry out basic activities like sitting up, lifting the head, swallowing milk and even breathing.
The treatment? A one-time gene replacement therapy called
Zolgensma, which, in her current state, could be a potential “cure”. It is available in the USA for around