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Nine-year-old with rare neurological disorder went from hip-hop dancing to being stuck in bed all day

  MONTREAL Before March 2020, Ella Huot-Attia loved her dance classes that helped the young girl combat a rare neurological disorder she was diagnosed with when she was six. Then COVID-19 hit, and the nine-year-old s condition drastically declined. It feels like someone is kind of stabbing me in the legs every 15 minutes, said Ella. With no dance, classrooms and other external services running that help her body fight off the pain, seizures and spasms she suffers from, Ella is now almost always stationary. She s in bed 90 per cent of the day, can t go to school, can t go to the bathroom on our own can t eat, and is basically confined to bed and wheelchair at all times, said her mother Anne-Marie Huot-Attia, 35. When mom tries to get you to do your exercises, and you re in pain, you re a lot less motivated, right.

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