The Daily Express is fighting for the NHS to buy them and other PKU sufferers who would benefit the drug Kuvan, which would enable them to eat more protein.
Accountant Anne-Marie, 39, who has another daughter, Matilda, three, without PKU, said: For most people, Christmas is a day to indulge yourself. But for adults or children with PKU it can be so hard as it just exag- gerates the difference between what they want and what they are allowed.
Doctors have told the family that miracle drug Kuvan would make a huge difference (Image: Kuvan)
Instead the family, from Ballymena, County Antrim, have to make Georgie and Emmie s meals from special lowprotein ingredients, including a bread that s available on prescription.