America’s Heroes “Group Military Families Matter” recently welcomed Pam Cusick, Vice President, Rare Patient Voice (RPV), as a guest panelist. RPV provides patients and caregivers with opportunities to voice their opinions through surveys and interviews to improve medical products and services while earning $100 per hour.
Although RPV connects patients and caregivers with research opportunities, they do not have access to the study results conducted by their clients. From time to time, RPV conducts internal studies and shares the results with participants. In a recent study, patients were asked several thought-provoking questions about their conditions. One question asked: Imagine if you could travel back in time and meet the person you were when you or your loved one were first diagnosed. What advice would you give them? How would you describe to that person how you feel now?