i laugh every day. i m never depressed, i m still organized for social justice. my life is good because i live at home with my wife rachel and our two young kids. most nights before dinner, my toddler willow sits on my lap and we watch sesame street. i m not the father i hoped to be, but i m grateful for each moment with my children, and it s all possible because i have 24 hour home care. when he was 32 years old, he was diagnosed with als, five years ago, after the birth of his first child. he s the subject of the documentary, not going quietly. after charles was born, we felt like we had reached the mountain top, and out of a clear blue sky, we were struck with lightning. i was diagnosed with als today. the knowledge that i was dying