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Alina Gorniak News Today : Breaking News, Live Updates & Top Stories | Vimarsana
Austin mother raising money for Sanfilippo syndrome research
An Austin mother is holding an auction to raise money for research for her son's rare, deadly disease.
Alina gorniak
I m just a mom trying to save my son s life | Austin mother holds auction to raise money for son s rare disease
The auction is selling goods, services, experiences, trips and other things, all in an effort to help fund a faster way to cure Sanfilippo Syndrome.
United states
Simon croke
Aliana gorniak
Alina gorniak
Cure sanfilippo foundation
Eric pointer
Orange theory fitness
North lamar
Austin family hopes son s love for basketball will help save his life
Simon Croke is a 'pro' at basketball, and his family hopes his skills will help bring awareness to the fatal disease he is battling.
United states
Alina gorniak
Simon croke
Sanfilippo syndrome
Travis county
It s like Alzheimer s for children : 5-year-old in Austin has Sanfilippo Syndrome
It is a rare and fatal disease that is the result of a missing enzyme deficiency that causes toxic storage to build up in the brain. It is like Alzheimer and Dementia, but in children.
United states
Glenn oneill
Jeremy croke
Alina gorniak
Simon croke
Cure sanfilippo foundation
Sanfilippo syndrome
Little steph
Cure sanfilippo syndrome
Glenno neill
Cure sanfilippo
Travis county
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