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Alina Gorniak News Today : Breaking News, Live Updates & Top Stories | Vimarsana

Austin mother raising money for Sanfilippo syndrome research

An Austin mother is holding an auction to raise money for research for her son's rare, deadly disease.

Alina gorniak

I m just a mom trying to save my son s life | Austin mother holds auction to raise money for son s rare disease

The auction is selling goods, services, experiences, trips and other things, all in an effort to help fund a faster way to cure Sanfilippo Syndrome.

United statesSimon crokeAliana gorniakAlina gorniakCure sanfilippo foundationEric pointerOrange theory fitnessNorth lamar

Austin family hopes son s love for basketball will help save his life

Simon Croke is a 'pro' at basketball, and his family hopes his skills will help bring awareness to the fatal disease he is battling.

United statesAlina gorniakSimon crokeSanfilippo syndromeTravis county

It s like Alzheimer s for children : 5-year-old in Austin has Sanfilippo Syndrome

It is a rare and fatal disease that is the result of a missing enzyme deficiency that causes toxic storage to build up in the brain. It is like Alzheimer and Dementia, but in children.

United statesGlenn oneillJeremy crokeAlina gorniakSimon crokeCure sanfilippo foundationSanfilippo syndromeLittle stephCure sanfilippo syndromeGlenno neillCure sanfilippoTravis county

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