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Musician neyo, American Idol david archuleta, and comedian nick cannon theyre just some of the celebs who support the Childrens Miracle Network hospitals. But 15yearold alena galan and millions of kids like her are the real stars of the charity. Want to open it . Alena gets a special present delivered to her house once a week. Its not clothes, jewelry, or games. Alenas gift is medicine that helps keep her alive. So, i have a rare genetic disorder called maroteauxlamy, or also known as mps 6, and i take an enzyme replacement once a week to help me live and grow. Its my enzyme. She has to go through a long procedure called an infusion that pumps the medicine into her veins. Super its four hours and ten minutes on a pump. Oh, shes beyond brave. Shes very brave. And its because, you know, the importance of getting her medicine. So, she knows she has to do it. Health professionals like pearl are able to help kids like alena deal with their medical condition in part, thanks to donations to C