Recognize my great friend and colleague, the best president of the best World Affairs council in the United States. I know we have a lot of World Affairs Council Members here. Gym falk, very, very grateful to jim for his help in this. As ive said, weve got the players, including stephen hadley, who will be speaking tonight, a truly great Public Servant who is the director of the nsc under bush, and i say Public Servant in days when that meant something and it really mattered. We respected people who hold these high positions. Were going to look forward to hearing from him tonight. And i think without even leaving the stage, im going to get the first panel under way so we can start this. As a college professor, i would say get your notepads out. There are going to be questions, discussion, so were going to start with our first panel, and i want to invite the panelists to come up to the stage. Tim sayle from the university of toronto is going to chair the panel and lead the discussion. H
I would be remiss if i did not recognize my great friend, colleague, the best president of the best World Affairs council in the United States. I know we have a lot of World Affairs Council Members here. Jim faulk, very grateful to jim for this help. We have players, including stephen hadley, who will be speaking tonight. A truly great Public Servant who was the director of the nsc under bush, and i say Public Servant in days when that meant something and it really mattered. And we respected people who hold these high positions. We look forward to hearing from him tonight. And i think now without even leaving the stage, i will get the first panel underway so that we can start this. As a college professor, i would say, get your notepads out. There will be questions, discussion. We are going to start with our first panel, and i want to invite the panelists to come up to the stage. Tim sale from the university of toronto, who was here as a postdoc, he is going to chair the panel and lead
Two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. The room is packed with people, patients and caregivers that live in this reality every single day. Right here, 350 patient stories from 44 states. This is long overdue. People that watch their bodies deteriorate in real time. Family
Among those speaking at the republican jewish coalitions 2023 Leadership Conference in las watch live at noon eastern on cspan saturday, or online at cspan. Org. Up next, testimony on access to research and treatment for patients with Rare Diseases. Advocates for medical ethics and therapeutic industry professionals also testified to provide insight on the fda Clinical Trial process. This hearing with the Senate Special Legion Committee is about two hours. With the Senate Special aging committee is about two hours. Good morning. Welcome to the committees eighth hearing of the 1 18 congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member braun in this case, will offer an opening statement. Ranking member braun thank you, senator. I thank the witnesses for coming and for all the folks from around the country who are here today. There are over 7000 rare and serious diseases known to man. Its est
Patients with Rare Diseases. Advocates for medical ethics and a therapeutic industry professionals also testified to provide insight on the fda Clinical Trial process. This hearing before the Senate Special Agent Committee is about two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. Th