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Rare Disease Congressional Caucus to Host Virtual Briefing: Economic Burden of Rare Diseases in America on Feb 25, 2021

Annie Kennedy, EveryLife Foundation for Rare Diseases Elisabeth Oehrlein, National Health Council Marissa Penrod, Founder and CEO, Team Joseph, mother of a young man with Duchenne Esther Krofah, Milken Institute, Faster Cures (moderator) About the Rare Disease Congressional Caucus The Rare Disease Congressional Caucus, a bipartisan, bicameral caucus, provides a platform to educate and engage Members of Congress on policy issues impacting the rare disease community and gives rare disease patients a voice on Capitol Hill. The caucus is led by the co-chairs, Representatives G.K. Butterfield (NC) and Gus Bilirakis (FL) and Senators Roger Wicker (MS) and Amy Klobuchar (MN).

Why Decarceration Is Vital For Public Health Amid COVID-19

PIH calls for release of incarcerated people, reduction in arrests Posted on Jan 26, 2021 Incarcerated people inside Cook County Jail post messages in the window and signal to protestors outside in April 2020 amid the COVID-19 pandemic. Photo courtesy of Getty Images. Across the United States, COVID-19 is running rampant in prisons, jails, and detention centers, putting millions of incarcerated people, families, and communities at risk. The COVID-19 crisis in America’s prisons disproportionately affects Black, Indigenous, and Latinx communities due to decades of mass incarceration a systemic injustice that is directly linked to the genocide, slavery, and structural racism that has marked the U.S. for centuries.

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