The fight of his life. The astonishing triumph. Bringing the simple joys back within reach. This special edition of nightline will be right back. This is a special edition of nightline. Within reach. Good evening. Thanks 4 joining us. Tonight youre about to meet a executive whose life came to a screeching halt. A Mysterious Illness bringing him to the brink of death. But his condition and his determination made him the perfect candidate for a groundbreaking human hand transplant. His dogged fight back captured in emotionally raw home videos should viewers might find disturbing. But his triumph unflinching. This is one of the most exciting things that could happen. Ready . Okay, ready. High five. Okay. Reporter for Jonathan Little moments like this are within reach. Theres nothing more independent than being able to drive around by yourself. Reporter for the first time in 2 1 2 years, this father is behind the wheel of his own car. On the open road. Ive felt the breeze before but right now it feels electrified. Like its humming on the inside. So i think that means that nerves are growing back. Thats amazing. Your hand is humming on the inside. Reporter his new hand coming to life. Because two years ago, the hand he was born with looked like this. Categorize this as not good. Reporter the successful hollywood executive defied unthinkable odds. After a twoyear medical odyssey that left him narrowly escaping death and getting a new left hand in a remarkable feat of science. With his girlfriend of seven years at his side, Jennifer Gunkel documenting her own raw emotions. Hes saved my life so far. Reporter and watching his determination to heal. Thats awesome. Reporter but then he was a 49yearold entertainment executive. At the top of his game. Hanging with jewel, publicizing their movie ring of fire. He was also behind the miniseries the kennedys starring katie holmes. Todays a big day. Your daddys going to become president. Reporter jonathan was on his way to a Reality Television suddenly slammed with what seemed like the flu. Felt like i had been hit by a truck. And i said, can you please help me get cleaned up . Get me out of here somehow . You were going to power through . Power through. It was a very important trip for my team and theyd been preparing for a long time, i needed to be there. Reporter he drove to the e. R. Where he got a shot of morphine before dragging himself onto a Cross Country flight. He arrived in d. C. But within 24 hours, he was fighting for his life. In icu at George Washington university hospital. It was an unthinkable plot twist for a movie producer who never drank, never smoked, and exercised like a fiend. Now doctors telling him to text everyone he loves, believing he has only hours to live. I made a very conscious decision with the last moment of consciousness i had not to text my daughter. Because when they told me that i had a small chance of living, that moment when i decided not to was rll decided that i just cant die. I cant. I cant do it. She shouldnt grow up without her daddy. Reporter doctors had no idea what was killing him but they did know his body was falling into septic shock. He was put into a medically induced coma. Wish i could have talked to him. I am just i wish i would have gone sooner. Reporter jennifer rushing to his bedside. Theyre testing for everything, everythings come back negative. Reporter his odds of surviving just 10 . It was described to me as multiple organ failure. His lungs, his heart, kidneys, he had to have dialysis, everything was shutting down. Reporter jennifer had been entrusted to make life or death decisions for the divorced, devoted dad. The kind whod never miss a fatherdaughter dance. I kept thinking about his daughter. It was just like she she cant be without her dad. So i was thinking every moment, this little girl. Essentially, you held his life in your hands. I know. And that was a really scary thing for me. Reporter during his coma, hovering between life and death, jonathan says he experienced powerful nightmares. One presented him with a critical choice. A voice, a very deep, very distinct, male voice, i dont know if it was my own consciousness, if it was a doctor by my bedside, if it was god, i really dont know even to this day. And it said, if you do decide you want to live, its going to be in the most vicious, painful, awful fight every day for the rest of your life. And you were up for the fight . Well, yeah. When you put it that way it was like, that i get. So i said yes. Reporter the instinct to fight, something instilled in him as a young boy. Tenacious boxer, an underdog named rocky. My dad took me to a drivein movie when i was 11 years old and we saw rocky. From that moment forward i just knew it was inside of me way more than i had ever thought before that day. You took rocky as gospel. It is the gospel. First of all, he didnt win. Rocky didnt win. People dont really think about that. Its about doing the work. Its about putting everything you have into it. If you just literally do your best at everything, thats really awe you can do. Reporter after his neardeath experience he woke with a newfound appreciation for what was important in his life. Do you have a conscious memory of seeing jennifer the first time you came out of the coma . I wanted to marry her. Thats the truth. We were not married and probably planning on not being married. Reporter the coma lasted the damage, severe. His body had shut off oxygen to his outer limbs to preserve his organs. His hands and feet were starting to die. Necrosis and gangrene setting in. What does the pain feel like in your hands . It feels like somebodys holding a bic lighter underneath my fingertips all day, every day. Reporter doctors wanted to amputate but jennifer intervened. When they came and said, we want to amputate, i immediately said, absolutely not. Reporter she began searching for other options. And eventually stumbled upon the possibility of a hand transplant. Turns out ucla boasts pioneering hand transplant research. Only 85 have ever been attempted globally. And a worldrenowned hand surgeon, dr. Cody azari, had been scouring the world for his next patient. I was looking for someone that was motivated, that was healthy, and had not had his amputations done. Reporter because jennifer had made the not to have jonathans hand amputated, he became the perfect candidate for dr. Azari. Why go through all these surgeries . Why not just go with a process thet nick. When you of that transplantation they oftentimes put you through psychiatric exercises. One of the questions is why do you want another hand . And i thought, well i mean, you have two. You know . I think the worlds built for two. And i can handle it. Reporter dr. Azari and his team began the process by amputating jonathans left hand, preserving his nerves and blood vessels for the eventual transplant. But dr. Azari also told him to get stronger and healthier. He was also gauging something else. What did you size up about his mental toughness . His mental toughness was what actually got me to fall in love with his personality. He is an Eternal Optimist like ive never seen before. Reporter but the Eternal Optimist faced a gri that his right leg could not be saved. That was an extraordinarily painful moment. She was crying with me. It was a real get it out cry. The admission that we have lost that battle was really tough for both of us. Reporter he may have been missing a leg, a hand, all of his fingers and toes. But just like his movie hero rocky, even in defeat come on, push it. Reporter jonathan kept fighting in order to qualify for that hand transplant. The first milestone . Oh my god. Reporter learning to walk with his new prosthetic. There you go. What was that like, that moment, what went through your mind as he took those first steps . Dont want to fall. Jennifer was crying. I could see scott in the mirror. I was walking towards him, i could see a big smile on his face. It was a heartwarming, chilling, just almost incomprehensible. Thats abou a balboa moment as youd get. Reporter within months hed have an even bigger moment. Running. Just like his hero. Finally, jonathan was ready for that hand transplant. Buttal the way they wanted to make good on one particular promise. What was your wedding day like . Our wedding day was very sweet. It was really noneventful, which is the way we wanted it to be. Gas really a 30second ceremony, it was joyous and happy. We really didnt want anything to change. After we got married, we got something to eat like we always do. Reporter their honeymoon period involved waiting for the ideal donor. You need to match for size, you need to match for color, you need to match for hair pattern. Reporter it took seven months to get the call. How are you feeling about your hand transplant surgery . Very peaceful. And hopeful that everything goes well. Reporter and then the complex surgery. 24 attendants. Coun arteries. Microscopically stitched together. Hand transplants are marathon surgeries because theres so many structures that need to be repaired. Nerves are like coaxial cables. Except theres no red to red, green to green, yellow to yellow connection. You have to figure out how they fit within each other so that the parts of the nerve that are for sensation match up and the parts of the nerve that are for motor function match up. Initial fears are that the vessels are going to clot and blood is not going to move through the hand. Theres no margin for error . Theres no margin for error. Reporter even if the surgery is a success, will he be able to control his new hand . 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Jonathan koch was a hollywood heavyweight who barely escaped death. Having lost his leg, about to lose a hand, he turned to a pioneering procedure, a human hand transplant. Could his dreams once again be within reach . After a marathon 17hour surgery, Jonathan Koch emerging with a new left hand. Its jennifers birthday when i got out of surgery. And she said, i just want one thing. I just want you to move one of your fingers. And i didnt think there was any chance i could. But i thought about it. And it moved. Thats amazing. For the rest of the day, any time anybody came into the room, doctor, nurses, friends, family, hes go as soon as we walked into jonathans room he gives me the thumbsup like the fonz used to do. Right . This guy, hes absolutely perfect. Reporter dr. Azari also thought the surgery was perfect. The team of 24 nurses and doctors from competing hospitals successfully attaching the donor hand to jonathans. Doc, will i be able to play the peon know after surgery . Reporter the recovery was far more treacherous than hed anticipated. What was the toughest part for you of the transplant . I woke up, my mind wasnt right. I wasnt breathing as well as everybody wanted me to. I was telling jennifer, im drifting away. I cant seem to get back, i cant get back into my life, in control of whats happening with me. It sounds like thats the first time selfdoubt crept into your mind. Yeah. All the work that i had done since getting home, working out in my wheelchair, trying to crawl up and down the stairs on things i did to rebuild myself, they came right back into play. Having to try to make sense of the hand transplant. Reporter but ever the fighter, jonathan soldiered on. One weekend hes gripping a tennis ball and throwing it. Next thing you know, he picks up a glass of water and he takes a drink and he goes, aah you feel fierce and powerful. You just do. So when i grabbed that bottle and i was able to hold it, even though it was pretty shaky, i feel fierce and powerful, this is an incredible feeling. Reporter movement by movement, grip by grip. Soon thrilling milestones left him giddy. Jonathan has met or in the vast majority of cases exceeded all of my expectations. I told him, jonathan, its going to take you maybe a year and a half to two years before you can at two months he sends me a video of him tying his shoelaces. Reporter the total cost . Estimated to be in the hundreds of thousands of dollars. Covered not by insurance but by ucla in the name of research, which could end up helping so many others. This feels good. I bet it does. It does. Reporter now within reach, moments like learning to drive again. All right, here we go. Whoa. Were out of here. On the open road. Yeah. It really did liberate him. Now he has the confidence and is ready to drive again. Couldnt tie his shoe before, now he can do that. He couldnt button things before. It just helps, you know, with hygiene, taking care of himself in that way. Was it worth it . All the pain, the rehab, the everything for the transplant . It was 100 worth it. Id do it again. I would tell anybody to do it. You cant imagine the change in my life as i regain my independence. Reporter hes just now to regain a sense of temperature, differentiating between hot and cold. And even bigger triumphs. It was his dream to play tennis again with his daughter ariana. Variety, swinging a racket with his newly acquired left hand. What does tennis represent to you . I just love the competition. Theres nothing more than i like to do than to go play as hard as i can and as well as i can and when its over with, no matter what happens, you know, its been an incredible experience. And once in a while you catch lightning in a bottle in a tennis match. Oh, there you go. And its everything you have. And i love that. How good have you gotten with your new hand . Im not great. You know, im learning to youre saying i have a chance . You definitely have a chance. Lefthanded, it hasnt been going great. I throw my racket sometimes accidentally because im still working on that. I do too. Its not as give all as i thought it was going to be, its just going to take repetition. Oh, i thought thanks, juju. Good play. Any other things youve been working on . Reporter now the man many described as a hardchanneling workaholic, a man whose life was roadmaped by a hollywood movie, looking for other stories. Its great, we should crack some of those. Reporter including his own, to inspire others. Good to see you, always. Good to see you, thank you. If your life story or this last chapter were in a pitch meeting to you what kind of story is it . A triumph over adversity story . A love story . You can name it all. Its a triumph of the human story spirit. Not just my standpoint but our standpoint and all my friends who rallied so hard. Just the amount of love and prayers and all those things that were coming to me that i could actually feel them. I felt lifted up by them. I know how many people were caring about me. Seven, eight, nine my girls fierce. Reporter the next chapter of this story now left five, six, seven, eight, nine beauty. Good job, dude. Well be back. When youre close to the people you love, does psoriasis ever get in the way of a touching moment . If you have moderate to severe psoriasis, you can embrace the chance of completely clear skin with taltz. Taltz is proven to give you a chance at completely clear skin. With taltz, up to 90 of patients had a significant improvement of their psoriasis plaques. In fact, 4 out of 10 even achieved completely clear skin. Do not use if you are allergic to taltz. Before starting you should be checked for tuberculosis. Taltz may increase your risk of infections and lower your ability to fight them. 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And of course tonight our thoughts are with all those waiting for that perfect donor to change their lives. Thanks for joining us. As always, were online at abcnews. Com. And our Nightline Facebook page. You know, theres a famous saying its not what you know. Its who you know. But whoever said that clearly never watched this show. This is who wants to be a millionaire. [cheers and applause] [dramatic music] hey, everybody. Welcome to the show. You guys ready to play millionaire today . [cheers and applause] all right. Our returning contestant is here because of one person and she will be really happy to hear he is only four questions away from a Million Dollars. From staten island, new york, please welcome back alex fumelli. [cheers and applause] how you doing, man . Good. Good to see you again, alex. [cheers and applause] hes back, and hes got a Million Dollars in his sights. Um, we talked a little bit about your mom and how she got you here, figuratively and literally. She signed you up. Thats right. Didnt tell me she was gonna do it. One day, she was watching the show, decided, i know who would be good at thismy son alex. Andand so she went online which is amazing, by the way, signed you up, and then she said, hey, you have an auditiongo. Yep, thats pretty much it. I showed up at the studio. You know, because it wasnt my own idea. Right. And i just sort of ran up there at the last minute, i was maybe cooler, calmer, more collected than i wouldve been. Right. Uh, it may have helped me. You had nothing to lose. Youre like, yeah, whatever. This is just fun. [laughs] and it worked out really