They say huu. How much are they willing to gamble . If i have to choose between losing my job or losing my kid, what would any mother do . Tonight, the promise. This is what you give up when you start using cannabis. The risks. We dont know the potential side effects. We dont want to make their seizures better and make their lives worse. And the families caught in the middle. It is awesome. I dont feel like a monster anymore. One kid, one day, of no suffering is absolutely worth it. Growing hope. Good evening and welcome to dateline. Im lester holt. Should medical marijuana be legal . Does it work . For which diseases . For doctors, it is about the science. For lawmakers, it is about politics. But for the families, youre going to meet, it is all so much simpler. It is about their children. Heres harry smith. Three mothers and their children. On this winter day in virginia, they have a big hill to climb. Each child is desperately ill. Each has a form of epilepsy. No one else i knew had a kid with seizures this bad and no one knew how to treat it. Illnesses so insidious, they have stymied an army of doctors and specialists. A year of huge emotional stress on our family. But these women believe there is something that might help, something illegal in virginia, an oil, extracted from marijuana. What is your hope for medical marijuana . To meet our daughter, to meet who she really is. To make that happen, these families are attempting to do something they have been told is impossible. They must change a law that has stood for decades. Tonight, well follow them on a remarkable journey, not only through the halls of government, but to the rocky mountains, where people with all sorts of illnesses are seeking help. These people, marijuana isnt about getting high, it is about getting well. Give kisses. Okay. Thats enough. There we go. Lisa and bobby smith were elated when their daughter haley arrived on august 20th, 2000. She was the Perfect Little baby. Or so they thought. Playing the piano, haley . Can you play some more . First seizure when she was 5 months old. 5 months . Right. Up until that point . Normal, happy, developmentally right on track. A, b, c, d, e, f, g. She was also my first child. I could have had blinders on and didnt see some of the signs that were there. Haleys seizures became more frequent, more violent. She didnt get diagnosed until she was 7. This was a true roller coaster. 7 years old. It was awful the first seven years because we didnt know what was wrong with her. Yeah. Over the years, haleys mystery only deepened. She was eventually diagnosed with dravay zoom, a rare form of epilepsy that can be fatal. Do you live your life on a kind of razors edge . Anywhere you went with her, you would just hold her and think, okay, she has a seizure right here, what am i going to do . Cool, huh . Treating the syndrome is a challenge. Quite often, epilepsy drugs dont work. Sometimes they do more harm than good. Actually in the emergency room every week and thats not exaggerating, every week from january to april in 2005. Come on, sweetheart. By 2012, haley was a teenager. And the seizures had only gotten worse. Haley was having about 300 seizures a year and to us that was okay. 300 seizures a year was okay. 300 . Yeah. We can handle that. You know nobody can comprehend that. I know. People are watching this, you said it was a pretty good year because you only had 300 that year. Yeah. 0. 108. All those seizures took a toll on lisa, now also raising and home schooling twin boys. And bobby, trying to make a living as a contractor and support his family. What else starts with h . Hat. About four years ago, desperate for anything that might be able to help her daughter, lisa stumbled upon a most unconventional treatment. She found a mom in colorado who said that marijuana worked wonders. We were on dozens of drugs and each one was worse than the next. Paige figgy is that mother. She lives in colorado springs. Her daughter charlotte was diagnosed with dravay syndrome as a toddler. She was on seven daily seizure drugs at 2 years old and had failed every drug at 2 years old as well. Charlotte was so sick, she was in hospice care. Paiges husband matt was a green beret, deployed to afghanistan for much of this time. Paige felt very alone. I hit rock bottom with her. The hospital said there is nothing left. We dont have anything left to do, were sorry, you should just go home and deal with this at home. So when they tell you just go home, are they basically saying go home and watch your child die . Literally i brought her home and i put her on a do not resuscitate, my husband had to sign it from afghanistan and i was going to say goodbye. And every night, actually ill say this, i was praying for her to die because it was so bad to watch the suffering shes going through. You just wish and she didnt. It is hard for me to admit that, but she didnt, and it is very difficult to see a kid suffering that greatly that you actually do, you just wish for it to stop. And it in her case the only way for it to stop was for her to just pass away in her sleep. But paige didnt give up. She kept looking. She and matt both discovered online reports of epileptic children whose seizures abated or even disappeared when they were given marijuana. They wondered if it could work for charlotte. We were in a legal state, i got her a red card, i got two doctors. For medical marijuana. For medical marijuana and i just started looking into it. Her doctor gave the go ahead. Paige was interested in an overseas study that suggested that oils made from a cannabis plant high in a compound called cananabadial seemed to be effective in reducing seizures. A friend put paige in touch with a grower. Together, they made the oil for charlotte. Shes catatonic in a wheelchair on oxygen on a feeding tube, and i put it in her feeding tube, the oil. In the measured amount, very low dose to start, and just waited to see if it would work. And she stopped seizing. She didnt have a seizure for seven days. Nothing had ever done this. Time out. Shes having 300 seizures a week, you think shes going to die, right . And you introduce this, for the very first time, and it just stops. Yep. Her seizures stopped and she didnt have a side effect. That was then. Where are you going . Up the trail . This is now. What are you doing . That squeal of joy is from 8yearold charlotte or charlie as her family calls her, speeding through the pine trees of colorado on the zip line her father matt built. Good zip liner. Reading paige and charlottes story online gave less lisa smith in virginia new hope, but also cause for concern. The use of marijuana, as a medicine, made her family uncomfortable. Yet the benefits seemed to outweigh the stigma. Pot, though, wasnt and still isnt legal in virginia. So the big question for the smiths was, should they uproot their family and move to colorado . Moving was not an option. It was always an option but it was way off. We chose to fight. We chose to fight. Fighting meant lisa smith would have to get the virginia General Assembly to change the way they thought about marijuana and convince them to change a state law. She knew she couldnt do it alone. So at age of 14, she has nothing left. If she was your child, what would you do . Coming up, call them a band of mothers, fighting fear of the unknown. Can they change minds and the law . Did anybody say, well, thats crazy because its never going to happen . Oh, yeah. All of the outsiders said no way. It wil lisa and bobby smith have cared for their daughter haley who suffers from a confounding form of epilepsy. Over time, they have connected with other families in virginia, with similar stories. In 2014, some of these families finally met in person at a seminar to learn how to lobby their state government. Together, they decided to do something audacious, convince the state legislature to make legal room for a very specific medical marijuana. If it was just a matter of getting oil for the children, healthwise, everybody is on board with that. Were from fairfax, virginia. This was the core group, beth and patrick colins and their daughter jennifer, who suffers from javan syndrome, another extreme form of epilepsy. And jennifer has a statement. But shes a little nervous so im going to read it for her. We came down to the capital today to lobby for medical marijuana. Rounding out the group, theresa elder, her daughter ashley, and her son tommy, 22. He wasnt supposed to make it to his 3rd birthday. The hope for all these families was that an oil, extracted from a marijuana plant, might help where all other medications had failed. So you as a group get together and say, well, we have got to get the law changed in virginia. Right. Did anybody say, well, thats crazy, because it is never going to happen . Oh, yeah, all the outsiders said no way, it will never happen. And why . Because it is the m word. You can be in there talking to someone, legislator, delegate, senator, and they say, oh, hi, whats your name, blah, blah, youre talking and you say marijuana, and theyre like you can see the reaction change. Look. Changing the law in virginia is critical for theresa and her son tommy because as soon as tommy doesnt become a resident of virginia, he loses all the services that i fought 22 years to get. Services tommy cant live without. Like he has home nursing, now that hes an adult, he qualifies for medicaid. When your bills are between 500,000 and 600,000 a year, thats a lot. And so the virginia families fight begins, on this day, they cram in a crowded hearing room, nervous but determined to begin the long process of changing the minds and hearts of these lawmakers. The families are not asking to legalize marijuana in the state, but they are asking for permission to use cannabisbased oils that have shown promise in treating epilepsy. Okay. Republican speaker of the house james howell listened to the parents in a meeting. But was far from optimistic. Please dont hold out any great hopes. It is a tough thing, and i dont want to set up any false aspirations. A new law would have to pass both chambers of the virginia legislature. This is the first step. A committee hearing. The proceedings begin with state senator dave marsden, explaining the bill hes introducing. Virginians shouldnt have to become medical refugees from their homes and live in other states. If you would, if you could introduce yourself then, it is the families turn. My name is beth colins, and this is our youngest daughter jennifer. She was going to testify, but shes not feeling well today. We had exhausted all other treatments. The side effects of her medication included rages, cognitive functioning issues excuse me. This was not the happy go lucky child i once knew. Its okay. Before beth colins can finish testifying, it happens, right there in the hearing room, haley has a seizure. Lisa struggles to stabilize her daughter, and tries to regain her composure. She still wants to speak to the lawmakers. This is lisa smith. She collects her thoughts and she steps to the microphone. This is normal for me. This is daily for me. It has been stated we dont know the longterm effects of medical marijuana. But i can tell you, i know the longterm effect of uncontrolled seizures. It will be cognitive decline, and premature death. I look to see if my daughters lips are blue. I watch when she sleeps. I look for the rise and fall of her chest at 14. Thats not what we do. So i ask you, please allow this to come out of committee. Finally, it is theresa elders turn to speak. She doesnt say much, but what she says comes straight from the heart. So let me leave you with this, if i come back here next january, it is very probable ill come by myself and youll recognize me and if i have an empty stroller, this very testimony will come flooding back to you. Please help us help our children. Thank you very much. Just seven days later, tommy would be rushed to the icu and put on life support. For theresa, and the other families, the stakes couldnt be higher. Coming up, help from a higher power . I started to realize there is absolutely nothing that is unchristian about helping people seven short days after theresa elder told the virginia lawmakers her son was running out of time, tommy elder was overcome by a powerful seizure. His sister ashley says its never easy for her brother. Sometimes hell come up to you and just give you this look, like, hey, im about to have a seizure and ill grab on to you. And then sometimes hell kind of yell out as hes going into it and you just hear this big, you know, grunt or yell, while hes going into his convulsions. Its pretty scary. This seizure lasted almost an hour. It was so severe, tommy was rushed to the icu. He went into respiratory failure. His lung collapsed and the seizures continued. His mother captured one on camera. Theresa sat by tommys bedside day and night, as doctors worked to stabilize him. This was the 39th time in his life that tommy needed life support. Theresa and the other virginia families were now more focused than ever. But as the legislation that they believed would help their children made its way through the virginia General Assembly, lawmakers continued to ask whether there was proof the oils even worked. The old hippocratic oath said first do no harm. We seem to have abandoned that and replaced it with, first, do something. To try to find the answer, we went to colorado. Medicinal and recreational pot are legal here. And because of that, the state has become something of a new lord, with people flocking here for cannabisbased cures. The main character s are in the middle of it all, are the Stanley Brothers, all six of them. The Brothers Story begins small, in a personal way. They had begun to legally grow medical marijuana, and gave some to a cousin dying from cancer. It really prolonged his life and gave him a better quality of life. The doctors pretty much told him go home. Get ready to die . Yeah. But it was another patient who transformed the brothers mission, for it was joel stanley who brought paige figgy the marijuana that was just right for her epileptic daughter, charlotte. We had what she was looking for, a type of plant, and i went to her house and i started talking to her and charlotte had two seizures want first hour of us sitting down talking. This became very real, but became a very difficult question, will you make something for my child who is already very sick . Charlotte figgy was first person to get the oil the brothers made. What are you going to watch on here . Paige says it stopped her daughters seizures. Say i want mini pop pop, please. Now, having hired botanists and scientists and built a lab, on a large scale theyre making the very oils the virginia families want to give their children. They even named the cannabis oil after their first user, it is called charlottes web. Ready . Ready . The oil was so effective, the figgies eventually took charlotte off all her meds and to this day, charlottes web is all she takes. And we just do that in the morning and the night and thats all charlie needs. You have to indulge me on this. Did anybody think this is a miracle . I still think it is. And another one happens every day. So youre from this big family, evangelical christians, right. Theyre a part of whatever moral tuning fork is inside you to say, this is a nonstarter . There are a lot of evangelical families produce rebels . I was all about it. Once i started to look into it, i started to realize there is absolutely nothing that is unchristian about helping people with a plant. The brothers say the oil is now helping hundreds of other children with epilepsy. The cost, 250 a bottle. It lasts two months. I wanted to have some kids come up, were going to plant this flower. A number of the families who come to colorado seeking help wind up at the realm of parent, a support group the stanleys helped establish. Heather jackson runs realm of caring, zakai is her son. She said hes been seizure free for the two years hes been on charlottes web. People, they hear these stories, they see these children, they still find it hard to believe. I know. I mean, i would find it hard to believe if i wasnt living it. Hopefully what will be able to do with the realm of Caring Foundation is to establish the research and collect it in a way that the Science Community can say that it is valid because, youre right, right now his story is just anecdotal evidence, just a good story. Darn good story, though. And yet as encouraging as the anecdotal evidence may be, there has been no Clinical Research on the safety or efficacy of charlottes web. Because marijuana is known as a schedule one drug, it is considered by the federal government as dangerous as heroin. Serious research in this country on marijuana treatments has been sparse. No one from the government, you know, has said, okay, buddy, you with this stuff, youre giving this to kids with epilepsy, are you nuts . You know, has the fda called you and said, wheres the proof . We cant go making claims that are not approved by the fda. And we dont. The resounding theme we get back from regulatory agencies and the medical community is lets research this. That was not being said a few years ago. Now it is being said. Miracle or not, it is precisely this oil, charlottes web, that theresa elder back in virginia was praying her state legislature would allow her to possess. And even as her son tommy clung to life in an icu, there came a most unexpected visitor. Senator dave marsden. He came to see tommy in the icu, which i believe helped him realize, wow, shes right, we dont have time. How are you . The senator decided to add an emergency clause to the legislation he was backing. A clause that would make the bill take effect immediately. If passed, the familys wait would be over. Coming up, a rare look inside the lab where charlottes web is made. When you look at this plant, what do you see . I see beauty. I see wonderment. I see incredible opportunity. Can one drug really replace all these . This is what you give up when you start using cannabis. When dateline continues. Charlottes web, the mystery oil made from cannabis, it is what many of the virginia families are fighting to have access to, believing it may help treat the epilepsy that plagues their children. Welcome. We were invited for a rare look inside the lab where the oil is actually made. This is our rotary evaporator. This is the side of the cannabis business few people ever see. No tiedye, no black lights, no bob marley posters, just plants and science. Bare real is the lead botanist. This is charlottes web. Right. What do you do with this here . We make our whole plant extract with this plant. We cultivate it in the field. We grow it up until it flowers. We harvest it dry and brings it back to the lab. Would you call that a marijuana plant or a hemp plant . The hemp plant. The distinction that the Stanley Brothers and everyone that works for them makes between hemp and marijuana is important to understand. A botanist would tell you the plants are the same. But according to the federal farm bill of 2014, a plant with less than. 3 of thc, the ingredient that gets you high, is hemp. This is all hemp. It has lower than. 3 thc. Lower than. 3 . 3 , right. It has a naturally very high amount of cbd. Cbd is the chemical compound some believe helps people with epilepsy. When you look at this plant, what do you see . I see beauty. I see wonderment. I see incredible opportunity. Do you think the rest of the Scientific Community and america is seeing the same thing . I think a lot of people are waiting to see how it pans out. One of the people very interested in how it pans out is dr. Amy brooks kael, a neurologist in denver, and the president of the american epilepsy society. She says currently there is just not enough science to prove the oils work. Or how they affect patients. There is no question that based on the science that there is potential there for a component of marijuana and possibly cannabidiol to be an effective treatment, but we dont know that yet, and most importantly we dont know the potential side effects. We dont want to make their seizures better and make their lives worse. Dr. Brooks kael suggests it is possible some of the improvement parents are seeing may be a kind of placebo effect. The expectations of the family and the amount of the investment that the family made to get this therapy might have weighed into their perception of whether or not their child responded. She says more clinical studies need to be done. The medicine, believing that we know the truth without doing the study, is a very unsafe thing to do. The reports from a Single Family or a single child doesnt mean that anybody else is going to respond that way. Dr. Alan bolling is a yale trained neurologist in denver who also wants to see more research. He says marijuana has the potential to impact a wide array of diseases, including his specialty, multiple sclerosis. Do you see potential for marijuana as a treatment for ms . What i see holds lots of potential for the future is that there very clearly are marijuanarelated biochemical systems in the nervous system and other parts of the body. In effect, he says the human body may be wired to utilize marijuana. Dr. Bolling treats bob, who asked us not to reveal his last name. Bob was a Trial Attorney for 25 years, until my 50th birthday, i was told that i had ms. Ms affects every patient differently. But dr. Bolling told bob there is research overseas that suggest marijuana can help with two of the most severe symptoms, muscle spasms, and pain. Bob buys marijuana at a legal dispensary and ingests it with a vaporizer. I use a strain called harlequin, which allegedly is i can take two or three hits and it would really take the edge off the pain without getting me high. We traveled down i25 from denver, into the mountains of dubai, california. There we met army veteran matt kale. Weighed heavily on my mind for a very long time. Kale has ptsd. After two tours of duty in afghanistan left him with a shattered skull and a litany of other conditions. I didnt believe that i had the right to live anymore. So ten months after i got back, right before christmas, i attempted suicide for the first time. In his darkest hour, he tried smoking marijuana. He says it made him feel better and he became convinced it helped his condition. Matt and his wife amy say they had no choice but to move from north carolina. I knew i had to move somewhere legal, so i became a refugee from my home. Marijuana refugee. I live here in colorado now because here we actually have freedom. This is my exit paperwork from the military. According to matt, the vas treatment plan was to give him a menu full of prescription drugs that he says turned him into a zombie. This is what you give up when you start using cannabis. These are all meds that were prescribed to you from all of the different ailments that you suffered from. Yes. Matt says using marijuana helped him more than all the pharmaceuticals he was on. But without more research, there is no way to know for sure. For matt, though, there is no question. Did marijuana save your life . Yes. I wouldnt be alive today without cannabis. I would be dead. I guarantee it. Did you get your husband back . I got my husband back. I got my husband back. Yeah. And my best friend. Back in virginia, there is good news for the families. After six grueling days in the icu, tommy elder made it home. And in the two months that had passed since we last saw them, the legislation they had been fighting for worked its way through the virginia General Assembly, and now it will all come down to a critical vote. Coming up jennifer grew up here, you know . A family forced to live apart in search of a treatment for their child. Will the upcoming vote help change that . Even parents need a time out sometimes, especially from communications technology. So why not spend one hour totally unplugged . Read, talk, make art, or whatever. No batteries required. The virginia families enter the historic state capital, on edge. It is now february, and they have come a long way. After today, the law will either pass or the vote will be put off for at least a year. Of the United States of america. Lisa smith is here with haley, theresa elder is here too, though tommy couldnt make it. And patrick and beth colins are here too, with their daughters jennifer and alexandria. Of the virginia families, the colins are the only ones who experienced the benefits of cannabis oil firsthand. In 2014, after hearing about charlottes web oil, their family made a decision that beth and jennifer would move to colorado for the oil, while the rest of the family stayed behind in virginia. I felt we really had no other option, but to try it. We didnt really plan out too long because it was too painful to plan out too long. This is our home. And jennifer grew up here, you know . And my family is here. And my other daughter goes to school here. The driving force in the colins decision to split their family up were the side effects of the medicines jennifer was on, side effects which they say were getting more and more horrific. Did you feel like you were losing your daughter . Absolutely. Losing our whole family. Just watching her cognitively decline and watching these rages that, you know, were devastating for her mentally. We had times we had to call 911 to come and have police come and help me because he would be out of town or something and, you know, i was afraid of my daughter. Little girl. A little girl. In colorado, beth got the charlottes web oil from the Stanley Brothers and gave it to jennifer. But it didnt work. So the brothers gave beth something else, thca, beth says that one did. What is it like for you to be free of some of those side effects . It is awesome. I dont feel like a monster anymore. A monster . Because when i had the rages, i felt like a monster afterwards. Because i would just physically attack my parents and i didnt have any control over it. What would you tell people who think, just think this is this whole idea of medical marijuana or that cannabis has any medicinal value, they just think thats it is a bunch of baloney. I tell them that ive seen it work, it worked with me. Ive seen it work in a bunch of other kids. And that its an amazing plant. You get on a plane, fly out to colorado, see with your own eyes whats happening. What did you think . This is amazing. Shes back. My daughter is back. Her personality, you know. Life changing. But splitting the family, being apart was too much. Beth and jennifer moved back to virginia. And thats why on this february morning, theyre gathered here with theresa elder and the smiths in the house gallery to await the final vote. The house is now in session. What this bill says is one simple thing. If you or your child has intractable epilepsy, youre caught with this oil, the commonwealth of virginia is not going to make a criminal out of you. The families sit, anxious, and waiting. The bill listed from pages 1 through 37. There are other bills up for vote first. House bill 1950. Huddled, high above the politicians deciding their fate, and the wellbeing of their children. It is coming up. Finally, the bill number pops up on the vote board. The vote is called. The mothers draw in tighter and cling to the hope that all this hard work wont be we cannot change the prescription. You could feel the tension in the Public Gallery at the State Capitol in richmond, virginia. But then, as if the numbers on a Lottery Ticket appeared in a row ayes, 98, noes 0. They won. They were told by a capital insider that a motion doesnt play in this building. Really . The final vote is 98 delegates for and two abstentions. Not a single no vote. These parents had done it. Their children had done it with them. Two weeks after the vote, Virginia GovernorTerry Mcauliffe walks into the office once occupied by Thomas Jefferson and amid the flashes of local press corps signs the legislation into law. Okay, folks. It is now law. [ applause ] i cant tell you, first of all, how much i appreciate the great work of delegate dave marsden. I want to thank the courageous mothers and fathers who have been down here lobbying to get this legislation passed. All of the virginia families are here for this historic moment, and haley, even with a life threatening disease, charms one last politician. Every parent feels that same way, youre going to leave the commonwealth of virginia, now you can stay. You saw the tears falling down the cheeks of everybody in that room, they want to stay here. It is an important victory for these families, but it does not make marijuana legal in virginia. It allows them to possess with a doctors certification the oils from colorado. A big question now looms, because pot remains illegal at the federal level, is it legal for the families to get the oil in colorado and bring it back to virginia . Technically, you still cant bring it in. Mail it, drive it, fly it. Right. Technically. Technically. Technically. Right. Yeah, but were not technical people. Yes, im here to pick up the oil. Where are you from . From virginia. Virginia. One week later, bobby smith did travel to colorado to pick up the oil from the Stanley Brothers. Most of them stop right there. Because of the work the mothers did, bobby will not face prosecution for having the oil in virginia. But he is defying federal laws by taking it out of colorado. The moms ran the marathon and i got to finish it. Thank you. Thank you so much. Nice to meet you. Nice to meet you too. Wow. Yes as far as we have traveled, as much as the moms have done, i hope and pray this medication works. As the sunrises in virginia, it is a new day. After bobbys trip to colorado, haley starts treatments with charlottes web. You ready . There is no guarantee it will work, but the smiths believe its worth a try. There it is. Tastes like brussel sprouts. Lisa and bobby are hopeful as they wait to see if it works. Jennifer colins is using the thca she first tried in colorado. And beth and patrick are lowering the doses of her antiepileptic pharmaceuticals. So now that you know that thca works for your daughter, are you prepared to break or circumvent federal law in order to make sure she continues to get it . Well, we wouldnt have worked this hard for this bill if we werent. For theresa elder and her son tommy, the situation is a bit more complicated. Theresa works for the federal government. By law, you cant possess it because youre a federal employee. Right. Right. But do you have an overriding moral responsibility to your child . If a doctor says it might be able to help, if all your Research Says it might be able to help, do you help your kid or do you defy your government . Thats a huge dilemma because i cant defy my government because i cant lose my job, but if i have to choose between losing my job or losing my kid, what would any mother do . As far as the parents in virginia travel and as far as the first mother paige figgy traveled, all the parents say there is farther to go. Federal government needs to finally step in and get involved. Paige figgy is lobbying on capitol hill for a law named after her daughter that would make charlottes web legal nationally. And all the virginia families are fighting for federal changes as well that would make medical marijuana easier to access and research. Takiing their case to lawmakers like kirsten gillibrand. Congress shouldnt get in the way of this. Dr. Amy brooks kael who says we dont know enough about cannabisbased treatments says a schedule one controlled substance creates a catch22. The fact that marijuana is a schedule one drug is a significant barrier to research. Is it completely preventing it . No. Is it slowing it down . Absolutely. In my opinion, should marijuana be schedule one . Absolutely not. There are no medical uses for marijuana. Paige figgy says because of those known medical uses, shell keep fighting until federal law is changed. I am just willing to go fight for this for kids because i dont want any more one kid to have to go through if i have to fight all these years for this, to help one kid to not suffer for one day or one hour, it is worth it. One kid, one day of no suffering is absolutely worth it. Lisa and bobby say a year later, haley is suffering less. To date, she had a 50 reduction in seizures. Nice job, haley if charlottes web works for haley, it will no longer have to fly to colorado because of virginias new law, the Stanley Brothers have decided to ship it there. And other states with similar laws. Yea, haley. In spite of the fact that several federal agencies maintain that oils like charlottes web are illegal. For these families, it has been an incredible journey that was once even considered impossible. But through it all, their inspiration has remained the same. Nothing i wouldnt do for my daughter. Either of my daughters. Were just like any other parent, trying to do whats best for their kid. When you have access to it now, if you didnt get the oil now and you waited and she passed during a seizure, you would always say why didnt we go, why didnt we risk it . Breaking a federal law would be okay if i still had my daughter. So we choose for life. Thats all for now. Im lester holt. Thanks for joining us. Next at 11 00, bay area students on alert. The search for two suspects who fired a bb gun at an apparent random victim at a dorm. Hotter 90s soon. The news starts in 30 seconds. A rock star entrance for donald trump at the Republican National convention tonight. That made for tv entrance now dimmed by melania trumps speech and its similarity given to the one given by First Lady Michelle Obama eight years ago. The news at 11 00 starts now. Good evening. Im jessica aguirre. Im terry m