Youngest of 3 siblings. But with Treacher Collins syndrome. About one in 50,000 people is touched by it. He is lacking facial bone development. Small jaw. He doesnt have cheekbones and you can see his eyes are a little bit lower. The challenges arent just on the outside. A tcs patient also has smaller airways. If youre a parent, imagine the sniffles leading to a trip to the hospital. Nearly every time. A common day cololputs him in theeospital. Kelli notes her other children, 17yearold page and 7yearold payton are on the familys private insurance but medicaid isnt just on income guidelines it also covers disabilities. T t transfer trenton and his medicaid in recent weeks. Id call the hospitals and try to help them by getting on the right program for trenton and they could not tell me anything. They told me to keep calling back. Now, a 60day wait for iowa with about 15 of the population using medicaid to truly have the infrastructure to handle the transfer. I received thousands of emails from people across the state wondering what is going to happen next. How are they going to know which managed Care Organization to has 5 different doctors and each is with a different managed care operation. Thats the case for trenton, with a team of doctors between uihc and Unity Point Health st. Lukes in cedar rapids. And, for the shift, kelli will be ready amid the others trying to transfer their coverage. I can be on the phone long periods of time even though its hard. This was a Health Care Story where you meet a toddler whose joy of life touches your heart. From health care and political leaders in iowa the delay has been largely met with approval today, even from those opposing the medicaid shift in the first place. That included s ste senator liz mathis, who has been one of the sharpest critics of Governor Terry branstads plan. As she and many others want this extra time to try and reorganize. Bebe . Turning now tweather and meteorologis t justin gehrts. Justin, cooler weather settling in eastern iowa . Our sky has cleared off for the time being, which will continue into the night. Our lows wi dip to around 20 or so tonight. Partly cloudy sksks return tomorrow, as does a blustery west wind. Itll be the coolest day weve had in quite some time with highs climbing to arnd 30. A flurry or two is possible near r e minnesota border. Temperatures drop into the teens friday night with 30s ahead on saturday. Clouds increase on sunday, bringing the chance of a few ght showers mainly sunday nighgh mild temperatures are likely next week; almost every afternoon should have highs in the 40s. Periods of rain are possible, as well. Tonight mostly clear low 1824 winds w 1015 alo 19 dbq 19 iow 21 back to you. A hiawatha family lost almost everything in fire at a Mobile Home Park earlier this week. The butlerwilliams family says no one was hoho when the fire broke out tuesday night. It happened at sunset Mobile Home Park right off i380 just after 6 oclock that night. The fire caused significant damage, forcing the family to find another home. Investigators believe the fire was accidental. Kcrgtv9s Sarah Mccarthy joins us live from near the burneddown home. Sarah, how did paramedics learn about the fire . Beth, four emts w w responded to a medical call in this neighborhood, noticed smoke here toward the back of this trailer. With almost no fire gear, the group jumped into action. 02 40 48 she said, i think thats on fire. So we all look over, i see flames, and i get on my radio. 02 29 28 hiawathfire to a trtrler fire on sunset. 02 07 54 normally, were at the firehouse and someone calls dispatch. Were not usually the ones calling dispatch saying theres a fire out here. 02 43 32 i helped set up some scene lights because it was dark at the time. Engine 284 to 264. 02 46 55 we were in the checkout line when my mom lled and said the house was on fire4 she said the Fire Department was already here, attempting to put it out. 85 to 287 02 32 08 while they were in route we were running a 360, trying to getting scene awarenesswe went to the windows and door to make sure no one was home. 02 30 02 looks like the trailers full of smoke. No signs of anybody inside. 02 47 48 it just seemed like chaos. There were multiple fire trucks here. It was just unreal. Unreal until you see his baby sons christmas stocking hanging in a burned out living room. And near the familys five year old daughters room. 02 42 32 all the presents were ba here, i mean theyrrgone. Fofo Robert Butler this aftermath is bad, but. Were lucky, because it couldve been worse. I mean its just a shell, but its Still Standing even though theres a massive amount of smoke and water damage inside. Damage decreased because of a glance in the 02 08 17 there was like a couple seconds where were like oh, is this really happening . But thenour training and instincts kick in. And a fire crew who knew what to do. 02 19 01 especially close to the holidays, you never want to see that happen to anyone. Its tough personally, but ofessionally its very very tough. The red cross is helping the family with temporary housing. But almost all their childrens clothing, toys, and Christmas Gifts are destroyed. If youd like to help, look for ths story on kcrg dot eom, weve put a go fund me link there. Live in hiawatha, Sarah Mccarthy, kcrgtv9 news. Some people at the university of iowa are protesting a controversial comment president Bruce Harreld recently made. Theyre angry after harreld said teachers who dont come prepared to class should be shot. Is week, harreld backtracked on that comment he made during a Staff Council meeting. Today, a University Spokesman said harreld was directing the comment at himself. Protesters say it doesnt matter whom was the intended target, it was inappropriate. I dont understand how you could be so, unsensitive and ignorant in using those words, but his is proving why we dont have any cocoidence in him. Harreld was not available to comment today. The University Said in a statement it respects the protesters right to gather. Tonight, Mount Mercy University in cedar rapids revealed a longterm plan to add outdoor athhtic fields. The 15 Million Dollar Capital Campaign is called the home fld advantage project the goal is to provide a true home field for the universitys track and f fld, baseball,l, softball, and soccer teams. So far, crews have cleared the land close to campus. To this point, the mustangs outdoor teams have been competing throughout the city, often on High School Fields and tracks. 17 49 weve been looking atat different facilities and so forth and, in the last 6 weeks, ive learned about track surfaces and artificial turf and weve been to some places but this is about whatate want to do and how we want to model something. Mount mercy leaders also stressed the importance of having facilities accessible to young people in the nearby moundview neighborhood. Caring for caregivers. Theres plenty of Research Showing those who help an elderly parent of sick spouse deal with intense stress and even loneliness. Thats why Mercy Medical center in cedar rapids opened the new family caregivers center. The center pairs each caregiver with a volunteer coach, who works with a family to provide support. Family caregivers are stressed because they feel overwhelmed and isolated. And often times they cant figure out what they need when theyre taking care of someone with a chronic condition. So our center will the Mercy Foundation is helping raise money for the family caregivers center, which is initially working with 50amilies. A Cedar Rapids Church is talking about faith through the storyline of star wars, as the new movie premieres in theaters. Tonight, the First Lutheran Church played some clips from the first six movies. Pastor craig brown told members about the fall of Anakin Skywalker as he joined the dark side, becoming darth vader. He also talked about his redemption through his son, luke. Pastor own likened itito the redemption through christ. 12 36 00 i think one of the biggest allures of this franchise is the battle between good and even. And i think thats people of fafah. Pastor brown says he is a huge star wars fan himself. And binge watched the episodes to find the right clipy for tonight. An iowa Business Owner recently offered two panhandlers a job. But he wasnt expecting the them. Hear what they said, oming up next. This is the bartels family. A Good Samaritan in muscatine says he found out not everyone asking for help wants it. The Business Owner offered two panhandlers a job. What they told him and what he did next has gone viral online, as jenna morton from our abc affiliate in the quad cities reports. Sommwould call it toughh love. The only way you can ever succeed in life is you just got to push yourself and dont let anyone stand in your way. On this corner in muscatine iowa you can find papaandlers several times a week. Two are regulars. After feeling bad for the boys mike pothoff offered them a job at his business. I said youre hired and then said were e t from around here and i said well youre here and then they just smirked. Over the weekend the same boys were back at it. Holding signs saying theyre broke and hungry. Once again mike offered them a jobobthey declined. So mike decided to join them. Pictures captured mike standing on the corner with them. Holding his own offered these guys a job. They said no. Dont give them money. The picture has gone viral. All of a sudden it just went kaboosh i mean it just blew up. Wwile mike doesnt have a problem with panhandlers he says he wants to make sure they really need the help. Itpsets me that we have younger kids or people that can work that are doing that. Its not the first time mike says he has offered a job to a panhandler. Im hiring down the street. You want to work for cash. To only have them turn the offer down. Its about you know people that really do need m mey andndaybe they do but i t tnk they can work too. And he says it wont be the last time either. If theyre going to stand out there and hold a sign and ask for money and say theyre homeless i can hold a sign out there i offered these guys a job dont give them money. A cedar rapids man is working to raise thousands of dollars to help struggling families. But hes also hoping to share another message with will continue into the night. Our lows will dip to around tomorrow, as does a blustery west wind. Itll be the coolest day weve had in quite some time with highs climbing to around 30. A flurry or two is possible near the minnesota border. Temperatures drop into the teens iday night with 30s ahead on saturday. Clouds increase on sunday, bringing the chance of a few light showers mainly sunday night. Mild temperatures are likely next week; almost every afternoon should have highs in the 40s. Periods of rain are possible, as well. Tonight mostly clear low 1824 winds w 1015 alo 1919bq 19 iow 21 high 2733 winds w 1530 alo 29 dbq 29 iow 31 tomorrow night mostly clear low 1521 winds nw 515 alo 15 dbq 15 iow 19 saturday partly cloudy high 35 low 18 sunday inc. Clouds, iso. Showers late highgh47 low 28 mondayay chance of f showers early high 40 low 40 tuesday isolated showers late high 45 low 32 wednesday chance of showers high 44 low 34 thursday chance of showers one cedar rapids man has launched a Fundraising Campaign to help struggling families, but his efforts also come with another message. Its one of kindness and love. Hassan selim is a religious leader at the Islamic Center of cedar rapids. He recently started a Gofundme Campaign to raise 30thousand dollars for the Salvation Army to help struggling families. Selim says he wants to help his neighbors and create a positive message surrounding the muslim community. 8 06 56 comments that are made by certain people, certain politicians the bad newsws coming frorothe middle east and even here weve been hit by terrorism so all of these things just fuel bad feelings and people dont feel comfortable, dont feel safe, dont feel like they can trust each other and i just wanted to share with some people the good news. If you want to help, you can find a link to his gofundme page with this story on kcrg dot com. 90 percent of peoplstill have some Holiday Shopping to do. Thats according to the National Retail federation. Many shoppers in dubuque we spoke with today say they plan to finish this saturday. That is traditionally one of the busiest shopping days of the year. Last minute or not, retailers say it seems shoppers are spending a little bit more money this year. Gasoline prices are relatively low, so thats putting a few more bucks in everyoyos pocket. So it wont encourage more pepele to come to a shopping mall, but it may allow those gift items. Also says more people are lookingngor an experience, rather than a traditional gift. Will feature the athlete of the week. And the hawkeyes are back on the practice field in iowa city. Stay with your 24 hour news source, kcrrtv9. It will be a busy weekend for republican candidates fresh off the most recect debate. Theyll try to sway iowa voters now weeks away from the caucus. Its also the last weekend before christmas. Kaj will have your forecast for gettogethers and last minute shopping tomorrow todays top stteam is starting their prep for stanford and the rose bowl. After some time off the hawks are back on the practice field this week getting their rythem back. They will practice in iowa city until they bord a flight to la christmas eve. Our coaches have been around the block and they know how to handle things of time off and they know when we need to go so we are picking things up again and getting back on our craft. The rest was key we were pretty bange up for a while now and try to get those main guys back should be a huge help especially against a really good Stanford Team. Sot 23 oc really good Stanford Team its thursday time for another edition of the kcrg tv9 athlete of the week sponsored by cedar rapids toyota. Central city junior samantha uhlenkamp had a monster week averaging 21 points and 8 rebounds in four games. She scored 32 against valley lutheran and missed the School Record by just two points. But even better than stats central city snapped a 60 game conference losing streak and have already doubled their win total from last seasononwhat was s like to win that first confefence game . It felt really good because people were finally starting to see we were starting to get better and finally people could see it. You only won one game last year and you u ve already doubled that this year how have you improved so much . Just as a team we are really close knit we get along really well and coach works us hard in practice and expects a lot out of us. She came within twtwpoints of the School Record saturday and i pointed out she missed two layupps and had the School Record had she not missed the layupps. I was really disappointed after the game i told coach last year if i got close to let me know and he forgot. I watched you shooting threes and you dont miss much we are going to have a blinded folded three point shooting contest first one to make it wins. Its all about visualization and samantha can shoot and she banked in the blind folded triple. I still had a chance to match her and the pressure was on and i couldnt tell by the cheer but they said it went in. So we had a playoff samantha just missed hers and i stepped up and ended it. In this compeition we used to do blindfolded killers but a kid almost got killed last year running into instead this year it is christmas time i am in the giving mood and for losing you get a ahristmas present. Go ahead and open it up oh an Anthony Clemmons bobble head. Do you know who Anthony Clemons is iowa p pnt guard. You donnknow who that is no we dont have cable. They dont have cable in central city. We gotta get sam some cable. Lets grapple jeff hosted prairie toninit on kcrg 9. 2. Prairie got off to a good start Conrad Braswell puts jake collins on his back for the fall and a 123 lead. Jeff got that six back at 120 Colton Mastin with the pin in just 45 secondnd. Great match at 126 Trenton Wennermark trailing 94 turns Brendan Baker for the fall to put the hawks on top 219. And at 132 sam utoff ranked number onin the state with the quick pin for the 279 lead. Jeff with back to back pins from 2nd ranked kyle briggs and tavian rashaad to cut the lead to 3621 but it wasnt enough taylor mehman puts a capper on it in the final match and 4th ranked prairie beat 8th ranked jefferson 42 30. Cedar rapids native ryan sweeney has signed a Minor League Deal with the Minnesota Twins with an nvitation to spring training. He did not play at all last season after being cut by the cubs in spring training. Sweeny is a career. 276 hitter with 23 home runs and 224 rbies in 9 seasons. Thanks scott. One last look at the forecast, joe. Our sky has cleared off for the time being, which will continue into the night. Our lows will dip to around 20 or so tonight. Partly cloudy skies return tomorrow, as does a blustery
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