transplant roles. doctors have put a tube down sarah's throat to help her breathe. janet murnaghan has told cnn the step means most likely sarah would have three to five weeks to live without a transplant. around midnight she posted, "it's been unimaginably awful here." and this all comes a day ahead of an emergency meeting of the group that sets national rules for lung transplants. members could change the policy that puts kids at the very end of the waiting list for adult organs no matter how sick they are. a federal judge last week intervened against sarah and another little boy, javier acosta right here, equal access to donors right now. cnn national correspondent susan candiotti sat down with javier's mother susan. >> reporter: pamela, good morning. cnn spoke exclusively to milagros martinez, the mother of 11-year-old javier acosta, and what makes this family's story especially heart breaking is that in 2009 javier's brother