meet, it is their reality. ♪ 15-year-old austin mcclaire has always wanted to be part of the high school band but day-to-day his mom jen says it is becoming harder and harder to play. >> austin's arm function is getting worse. i can see him struggling to lift his drum sticks. >> reporter: austin has a severe form of muscular destiny known as duschene. it's the disease that jerry lewis has been raising money for, for the past 60 years. have you noticed anything over the last couple of years that's become more challenging? >> it's been harder to get in my bed and position myself. >> reporter: having one son with duchenne would be hard enough. for any mom. jen has two. austin and his younger brother, max. boys first lose the ability to