because it was very scary. the doctor just very clearly stated, he has this condition, there's no cure. we'll have to be careful throughout his life. >> how nervous were you that he could die? >> i was afraid every day that i would go downstairs or go to his bedroom and he may have passed away in the middle of the night. one time we were driving in the car, and ben, with a different tone in his voice, said, mom, how do we know if we get to go to heaven? and -- >> how old was he? >> he was 4. i told him you just let jesus know you want to be there. he asked jesus if he would be his friend for the rest of his life. >> was he emotional when he had this conversation? >> he was. he actually had tears in his eyes. [ sirens blaring ]