he's almost feeling like a child that doesn't have sma. he can roll, he can hold his head. i mean, honestly, it's endless, what he can do, compared to what he was doing before treatment. it's incredible. # if you see a crocodile...# the earlier a baby is given the drug, the better — ideally before the symptoms start. it wasn't clear whether edward would qualify for it. the thought of actually losing him was very, very, very real. and so it makes you appreciate every single little thing — every tantrum i appreciate because he can... he's got the strength to be a naughty boy, you know? and it's all those things that ijust didn't even think he would ever be able to do. spinal muscular atrophy can be detected in newborns using a simple heel—prick blood test. the condition affects one in 10,000 babies. great 0rmond street is calling for all newborns to be given the test.