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It’s almost a year since the O’Keeffe family from Aylesbury Park were dealt a devastating blow when they were told that their seven-year-old son Charlie would not be eligible for the life-changing Cystic Fibrosis drug ‘Kaftrio’.

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Crumlin ,Donegal ,Ireland ,Sarah Okeeffe ,National Centre For Pharmacoeconomics ,Cystic Fibrosis ,Sligo Champion ,National Centre ,

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