A form of hemophilia a rare and severe inherited disorder that impairs the bloods ability to clot the slightest injury a grain has an internal bleed or even just a bruise could cause a reparable damage i mean im very engine ricker it is easy for me with. Every day richard inject himself with the blood clotting agent factor 8 these days its sterile and safe but in the mid seventys and early eightys a treatment like this infected about 5000 people in the u. K. With either hiv or hepatitis c. Or even both. Richard was a month and he had to undergo a series of treatments. Very cross. Side effects mood swings and sweating in. Part. To take. Drugs. In the 1970 s. A new drug called factor 8 was released to using human blood it promised a much easier life for him affiliate they no longer needed to go to hospital and could self administered the treatment by injection at any time or convenient place. But it had one fatal flaw rebelde which patients knew nothing until too late. One of your treatment might contain the donation of 4050000 people. A lot of products in the u. K. Came from america and one of the things we now know is that the people giving those. People who were in prison. And i encouraged to give them. To provide. This is a result that you were 8. Years and you were. Not where you told that you were being. The drugs dont move and the brutes and ankle supports have saved me a few times because sometimes you walk and you roll your own call and if i didnt have these on i would have very bad bleed through one girls. Like other human philly x. Martin has problems with joints mainly his knees and elbows caused by internal bleeding. And was diagnosed within a full year about the age of 6 months old. Growing gawp with hemophilia back then for a parent it was a nightmare children there always were in falling over buying in themselves and i would have all kinds of internal bleeds and damage to my joints. Martin was under constant medical care 1st at Birmingham Childrens hospital and of your age of 17 he was sent to an adult facility. I remember being in the white in room and my name is called out now the doctor doesnt even introduce himself his 1st words were hello a c. Or a child he paused i didnt understand the significance of what he was saying because i was a healthy teenager a my words to him were all well thats life. Even goes on to say that your life for the next 2 years and then i said what do you mean by that. And he goes you got 2 years to live. Thats when it hit me. So we rode back to birmingham and got a letter that says on it but i was tested in 1900 on without my knowledge i was found to be positive but it also says that i found an old sample of my blood from atlanta 93 and i was positive then. But i could have been working on why i could have been sleeping with somebody and it would have more to for me if i even tried to go what gives them doctors the wrong time to play god but that im risk all the peoples laws why didnt they tell me. In 1981 i knew had previously unheard of disease was discovered in the United States acquired immune Deficiency Syndrome aids. In january 982 with the 1st hemophiliac contracted aids in the us 9 more cases have been recorded by the end of the year 8 of which were terminal. Despite this Great Britain continue to import american factories. And are you proud of your all the new jump. Up and lots of you call him. Ever jerry jerry j. J. Sure. My dad lived with hemophilia. Really did all want. To get his way the time it was kind of an odd thing the song people. Say here with area carpenter using. Saws and swinging. Wood around the shop the things. That stick let me go i was. Crazy. Im very thankful he told those videos because its the evidence why memory doesnt have. Kids he was a father to me and he raised me and was doing everything a father should. Say there i was. In towards the late seventys he sees concentrates because. Thats where the doctors are saw him and everyone else see use. Main 1803. 00 so the 1st reported case of the british hemophiliac contracting the disease. Appeared in the press claiming that factor 8 was a safe. In november of 84 he raised concerns about the products with these stops and they told him this is just sensationalism its fine you know dont worry they convinced him to carry on using fats concentrate and then it was only shortly after that the his 1st choice the tests came back as opposed to. Things just became very difficult for a strain on the relationship with my mom you know theyd only got married and nothing their life went from being one of planning for the future to planning for the end. He took to new statements about one of the worst things being the feeling of sticking that. With relation to. Her charge in the early turds who christer people term good for you were. Doubts that he was positive felt such fear never felt little its not the fear of what he might suffer its its social its everything its children its housing its your careers everything is gone it was something to be ashamed of even though we did nothing wrong he did nothing wrong i had been a prominent player locally and then one dart i walked into a pole to play mama and the landlord just pointed out me and said you get out the pool team ive been playing with they all still there not one of them tried to defend me of how sick. And i felt dead. This was a classic case of. Well informed it. Doesnt take away the fact that it made me feel a lot rubbish. My dad lost his job among got such a job they received hate mail farm coles making fun of. The stigma was in front of its this whole thing though if you had a zoom you a gay or you druggies are all some kind of what they sold to be and desirable. By 9190 nights a had become verio. Who had progressed to a its only opportunistic infections using off way slowly going through a horrible death. And. By the end of my 3. News news that. Jason evans founded the independent Campaign Group factor 8 its members of the immediate relatives of him affiliates who died because of contaminated blood products his Organization Provides them with legal help. All you really want to go when i got involved in campaigning on this subject i wanted to tell on the official record what happened could and should have been avoided i think after that point maybe theres room for support for people counseling and compensation and all these other things but i think for me personally once its on the record that there is liability then. Its going to be hard to reclaim freedom and were going to have to work at it but as people recognize from examples like she. Told systems need to. I hope people will start fighting. Saying we wont tolerate systems. Streets in our homes that cant possibly track what were doing. Is youll be a reflection of reality. In a world transformed. What will make you feel safe from. The isolation community. Are you going the right way or are you being so. Direct. Was his faith. In the world corrupted you need to descend. To join us in the depths. Or remain in the shallows. We can see which perhaps most clearly important document to date stamp 10th of september 1976 so very soon after you would have been starting it should all come and we can see the words have otitis rights was the existence of a risk of have a tie to something you or your parents were aware of the time martial. We cash cow and that is dari alfonzo mongery has died. Hes died in. There hes died on lost one of the page service cherish unpaid change guard or. At 11 years of age richard went to Trial Lawyers College a special boarding school for children with disabilities. Theres an n. H. S. Health center on the campus students could receive the medical care they needed and attend classes all in the same place. Its also the signs of the greatest concentration of contaminated blood cases that the u. K. Has ever seen. What it. Is that you receive significant quantities of patsey rates of prophylactic base. There are crazy of. Us arent to we have target joints and that was my left mate neither of our rights. Or our Current System why they would give me consecutive doses day after day. Great britain will be selfsufficient in blood products and will guarantee their purity. It was the governments promise in the 1970s. When government came in that pledge in the name went away and they found a way around the. Importing this particular product. All these issues were very often at meetings of 1015 people but they were all held in secret no one was allowed to publish the minutes of the meeting. The main beneficiaries of that secrecy were pharmaceutical companies. These companies had a huge financial motivation to sow these problems today. The fact concentrate market is a 1000000000 dollar industry in order for the need to say our product is safe for the next companies they needed a trial date that showed weve used this product and its not infectious and in this country at least the dot is. Often as consultants to the pharmaceutical home as there are numerous documents showing that doctors in oxford doctors in cardiff were keen to test facts or a concentrates infectivity on their patients to all hemophilia since directors. Initial Production Batches may have been tested for infectivity by injecting them into chimpanzees it is unlikely that the manufacturers will be able to guarantee this form of Quality Control for all future batches it is therefore very important find out why studies in human beings to what extent the infectivity of the various concentrates has been reduced. The reason they used humans instead of chimpanzees was one because chimpanzees were expensive and essentially patients were free when they dont know that experiment we tried to speak to the pharmaceutical companies that produced factory took the time over the last 50 years they have changed names and ownership several times and none wanted to talk about the contaminated blood issue now. What we know now is that the trolls are also conducting tests regularly and keeping records of liver function tests which made you think ok so what are we actually looking for figuring in a safe product or if you want to monitoring how you live. Or if you trace there was are you c. T. For kanwar with looking at these things. Out of the 18. 9 hemophiliacs who went to trial is college 72 died. And people are still dying. From liver related problems rush to have a charge say. I actually feel guilty im still here i asked myself the question why am i still alive when you know 70 percent of the him feel that boy use the watch college. Ive had and i dont care and im always question yourself why me i why am i still i live by being allowed to live when so many have and. The official claim was that the new medicines were safe the most emphatic statement to that effect was from Kenneth ClarkHealth Secretary under margaret thatchers government. I think someone that really has a lot to answer for as a minister is kang. The well known Kenneth Clark actually stood up for an argument and said there is no conclusive proof. Is transmitted through blood products he really needs to answer for putting out that type of misinformation and this was the reply we received from kenneth clocks office and krista clark has chosen to decline through whats been and from the u. K. Department of health and the infected blood inquiry is a cabinet of its leader and therefore they will be the ones best placed on see or questions beyond that initial acknowledgement the Cabinet Office has not responded to our request. And all we could find on the official u. K. National Health Service website was a report mentioning that victims are entitled to apply for compensation. 2019 and for the 1st time the u. K. Government agreed to hear what the victims had to say a Public Inquiry was opened in london and jason evans Group Factory is taking part in it is finally happening its been. A long road and this is a this train journey is one that i say him countless times over the last 34 years. Even before jason was born his father was aware of the deadly disease. In spite of the risk of passing on the contamination his baby was born. After i think about how would i have dealt with what my dad went next year ill be the same age my dad was when he died. I think about if i was to die it next year that age that would have been really a very short life. That weighs heavily on my mind. Oh in 1918 i see there and. Yes how. Shall we say. The wife knew pretty soon after and she went to see her doctor. Where we were advised really in no Uncertain Terms not care to look at. It was all in those few months so mixed together and at the time we were still reeling from the shock and the implications of dealing with the times now sis i could have been positive in which case what would we you know we. Being an approach child at that time to be in often if youd come into the world we didnt know how long we have all the child could have been positive as well as me in which case was it morally right to give birth to a child that i be you know suffer terribly i couldnt walk away from a man who i spose to love. Just when he needed me well. And once we found out that i was ok. Afterwards. I realized that if i was going to be a mother it wouldnt be with richard and i just say with richard he said youre a perfect stream really loving and supportive wife yes shes shippers in general. As it. Assists a Great Sadness to you base this being that you have to have children. A problem if there. Really. Anything you would. Have to say at the time it seemed easy i didnt feel as if we had any choice. Only lazy thing. But hey. Martin baird was also thinking of starting a family his girlfriend was a nurse at the hospital where he received his treatment. Ive got the dial m. Earth hemophilia awesome not all of the don lemon or of a child of a not just infecting her but possibly possibly on to children as well so took the decision after about a year to split tilt so that i would feel a she could go off and have a family of our on and thankfully she did and were still friends on facebook you know and she seems happy which is good. Missionary very apt rebate and not such a. Very loyal dogs rottweilers are. Very protective as wild. Animals. One of the greatest comfort she can ever offer. Because she can have the lousiest day in the world when you walk in that house and the dogs place to see your. Dogs know when youre in i know when youre in trouble and. Its soothing. The. 2 attempts were made over 40 years to investigate the causes of this medical disaster in the u. K. But sofa no one has been held accountable. The current inquiry is goal is to gather evidence the final decision about how to proceed after that will wrist with the government. I have no doubt that what happened was criminal i think the real question is to walk degree was a criminal i mean nothing a bad minimum were talking about some form of criminal negligence and perhaps corporate manslaughter. Perhaps. And i think the inquiry can help direct in some way where where those lines made. Their criminal prosecutions have been brought in other countries and they have been successful particularly in france whether they will be brought in this country i suspect not the reason they wont bring them though the Crown Prosecution Service wont be directed to bring those prosecutions its because its widely accepted that they would be successful and the only way they can a boyd a successful prosecution is to avoid bringing it up. The Public Inquiry is expected to continue for at least 2 to 3 years too late for the victims who have already died and to long for those still fighting for their lives every doing morning. First witnesses. It was so frightening. I was told about a year to live it was a hard time its so frightfully experience it wasnt a life. Really treasure exams anymore because we did a few years so we will actually. I dont feel calmer it. Came out the last 20. Tome swamps it down the house hard enough is no way should have to do that we just wanted to be with them. And i believe now is the time to do is to say. We are supporters of recognition of. A meaningful recompense for the larger. Story from those. Its going to be hard to reclaim freedom and were going to have to work at it but as people recognize from examples like. What repression and Digital Systems need to. I hope people will start fighting. Saying we wont tolerate systems. Streets in our homes that cant possibly track what were doing. By social class. People poverty. If youre born into a poor family. Born into a minority family if youre born into a family that only has a single parent that really constrains your life chances people die on average 15 years younger than you born into generational poverty. Its a tough fight every day to meet your needs and the needs of your family. In the headlines this often to germany is deliberately laying a response to moscows request with poisoning. Every possible white house according to russias Parliament Representative to the Global Chemical weapons watchdog. Deliberately delaying the process impeded the completion of the preliminary inquiry and brush that was held in order to ascertain whether there is an offense or not. For the french mares condemn the Health Ministry for not consulting with the reimposing coronavirus restrictions across the country as covert cases. Also had money and power the pentagon is accused of pouring the pandemic budgets into military means