We same say only time we may trip as a community. Happens all the time and we always sigh we must stop meeting like this most. Of the. Take the person youll raise taxes should be talk to me i swear by almighty called i swear by almighty god the evidence i should get there with him so i shall give me the truth shall be the truth the whole tree the whole truth and nothing about nothing but the truth he stayed on for john war. I just. Try. And. I was getting. Richard has a form of him a failure and severe inherited disorder the ability to. The slightest injury an internal bleed or even just a bruise could cause irreparable damage. Every day richard inject himself with the blood clotting agent factor 8 these days its sterile and safe but in the mid seventys and early eightys a treatment like this infected about 5 people in the u. K. With either. Or even both. Richard was a man and he had to undergo a series of treatments. Are very cross. Side effects mood swings and sweating in. Part. To take. Drugs. In the 1970 s. A new drug called factor 8 was released to using human blood it promised a much easier life for him a philly x. They no longer needed to go to hospital and could self administered the treatment by injection at any time or convenient. But it had one fatal flaw rebelde which patients knew nothing until too late. One. Of your treatment might contain the donation of 4050000 people. A lot of products in the u. K. Came from america and one of the things we now know is that the people giving the. People who maybe were in prison. And they encouraged to give that. To provide. This is a result showing that you were 8 feet 3. Years and you were. Not were you told that you were being. The drugs dont move and the brutes and ankle supports have saved me a few times because sometimes you walk and you roll your own call and if i didnt have these on i would have very bad bleed. From one girls. Like other human fairly x. Martin has problems with joints mainly his knees and elbows caused by internal bleeding. And was diagnosed within a full year about the age of 6 months old. Growing gawp with him earlier back then for a parent it was a nightmare children there always running falling over buying in themselves and i would have all kinds of internal bleeds and damage to my joints. Martin was under constant medical care 1st at Birmingham Childrens hospital and of your age of 17 he was sent to an adult facility. I remember being in the White America and my name is called out now the doctor doesnt even introduce himself his 1st words were hello us we are a child people i didnt understand the significance of what he was saying because i was a healthy teenager a my words to him were all well thats a lot. Even goes on to say that your life for the next 2 years and then i said what do you mean by that. And he goes you got 2 years to live. Thats when it hit me. So we rode back to birmingham and got a letter that says on it that i was tested in 1900. Without my knowledge i was found to be h. On the positive but it also says that i found an old sample of my blood from down to 93. 00 and i was positive then. But i could have been working on why i could have been sleeping with somebody and it would have more to for me if i have infected a girl what gives them doctors the wrong to play god. A risk or the peoples laws why didnt they tell me. In 1981 i knew had previously unheard of disease was discovered in the United States acquired immune Deficiency Syndrome aids. In january 982 with the 1st hemophiliac contracted aids in the us no in more cases have been recorded by the end of the year 8 of which were terminal. Despite this Great Britain continue to import american factories. Are you proud of your all the new. Research im lots of you call him a for. Ever jerry jerry j. J. Sure. My dad lived with him ophelia. Really did all one thing aim affiliates again is way the time it was kind of an odd thing the song people. Say here with area warnings and they are carpenter using these huge source and swinging. Wood around the shop things. You know that sick let me go i was. Crazy. Im very thankful he told those videos because its the evidence why memory doesnt have. Kids he was a father to me and he raised me and was doing everything a father should. Say there i was. In towards the late seventys he sees concentrates because. Thats where the doctors are saw him and everyone else see use. May 1983 so the 1st reported case of a british hemophiliac contracting the disease. Tickles appeared in the press claiming that factor 8 was a safe. In november of 84 he raised concerns about the products with his stopped and they told him this is just sensationalism its fine you know dont worry they convinced him to carry on using fats concentrate and then it was only shortly after that the his 1st choice the tests came back as positive. Things just very difficult for a strain on the relationship with my mom you know theyd only got married and nothing their life went from being one of planning for the future to planning for the end. To senior statements about one of the worst things being the feeling of sticking that. With relation to their church in the early turks who christian people dont get very for you were. Doubts that he was positive felt such fear never felt little its not the fear of what he might suffer its its social its everything its children its housing its your careers everything is gone it was something to be ashamed of even though we did nothing wrong he did nothing wrong i had been a prominent locally and then one night i walked into a pole to play mama and the landlord just pointed out me and said you get out the pool team ive been playing with they all still there not one of them tried to defend me of how sick. And i thought dead. This was a classic case of. Infomed it. Doesnt take away the fact that it made me feel a lot rubbish. My dad lost his job among got sidetracked her job they received hate mail phone calls making fun of. The stigma is incredible its this whole thing though if you had a gay or you a drug user or some kind of what they sold to be an desirable person. By 9190 nights a hed become verio. You had progressed to a its only opportunistic infections using a lot of way slowly going through a horrible death. And. By the end of my 3. News news that. Jason evans founded the independent Campaign Group factor 8 its members of the immediate relatives of him affiliates who died because of contaminated blood products his Organization Provides them with legal help. I really only had one goal when i got involved in campaigning on this subject i wanted it on the official record that what happened could and should have been avoided i think after that point maybe theres room for that as support for people counseling and compensation and all these other things but i think for me. So they want on the record that there is a liability that. Time after time corporations repeat the same mantra sustainability its very important to accelerate the transition to sustainable price board sustainability. A more equitable and sustainable world. They claim their production is completely harmless. It. Companies want us to feel good about buying their products while the damage is being done far away and this is just going to an even an. Undisclosed so when. We can see which it has most clearly documented date stamped 10th of september 1976 so you very soon after you would have been still saying it should all of them and we can see the words have to script. The existence of the risk of have its like something you or your parents were told must. We cash cow and that is dari alfonzo mongery has died. Hes died and while its going there hes died on mars one of the page service chosen paid changed or. At 11 years of age richard went to Trial Lawyers College a special boarding school for children with disabilities. Theres an n. H. S. Health center on the campus students could receive the medical care they needed and attend classes all in the same place. Its also the signs of the greatest concentration of contaminated blood cases that the u. K. Has ever seen. Ringback busy what it. Is that you receive significant quantities of fatty rates of prophylactic they. Are crazy about. Arent too real target joints nose mild left me me of our rights. Our Current System why they would give me consecutive doses day after day. Great britain will be selfsufficient in blood products and will guarantee their purity. It was the governments promise in the 1970s. When she came in that pledge in that aim went away and they found a way around the. Importing this particular product. All these issues were very often at meetings of 1015 people but they were all held in secret no one was allowed to publish the the minutes of the meetings. The main beneficiaries of that secrecy were pharmaceutical companies. These companies had a huge financial motivation to sow these problems today the facts on. And freight market is a 1000000000 dollar industry in order for me to say our product is safer than this company they needed a trial date that showed weve used this product and its not infectious and in this country at least the dot is. Often as consultants to the pharmaceutical home as there are numerous documents showing that doctors in oxford doctors in cardiff work keen to test facts or a concentrates infectivity on their patients to all hemophilia since directors. Initial Production Batches may have been tested for infectivity by injecting them into chimpanzees it is unlikely that the manufacturers will be able to guarantee this form of Quality Control for all future batches it is therefore very important find out why studies in human beings to what extent the infectivity of the various concentrates has been reduced. The reason they used humans instead of chimpanzees was one because chimpanzees were expensive and essentially patients were free when they dont know that experiment we tried to speak to the pharmaceutical companies that produced factory took the time over the last 50 years they have changed names and ownership several times and none wanted to talk about the contaminated blood issue now. What we know now is that trolls are also conducting tests regularly and keeping records of liver function tests which made you think ok so what are we actually looking for figuring in a safe product to be one to monitoring how we live our. Times our. Tastes our rules our u. C. D. For care why would we be looking at these things. Out of the 8090 of us. Who went to train those college 72 died. And people are still dying. From liver related problems to have a charge say. I actually feel guilty im still here i asked myself the question why am i still alive when you know 70 percent of the him feel that boy use rats college and ive had and i dont care and im always question yourself why me i why am i seen i being allowed to live when so many have and. The official claim was that the new medicines were safe the most emphatic statement to that effect was from Kenneth ClarkHealth Secretary under margaret thatchers government. I think someone that really has a lot to answer for as a minister is. The well known Kenneth Clarke actually stood up for an argument and said there is no conclusive proof. Is transmitted through blood products he really needs to answer for putting out that type of misinformation and this was the reply we received from kenneth clocks office chris the club has chosen to decline this request and from the u. K. Department of health the infected blood inquiry is a cabinet of its leader and therefore they will be the ones best placed to answer your questions beyond that initial acknowledgement the Cabinet Office has not responded to our request. And all we could find on the official u. K. National Health Service website was a report mentioning that victims are entitled to apply for compensation. 2019 and for the 1st time the u. K. Government agreed to hear what the victims had to say a Public Inquiry was opened in london and jason evans group factor 8 is taking part in it is finally happening its been. A long road and this is a this train journey is one that i say him countless times over the last 34 years. Even before jason was born his father was aware of the deadly disease. In spite of the risk of passing on the contamination his baby was born. In think about how would i have dealt with what my dad went next year ill be the same age my dad was when he died. I think about if i was to die i didnt a share that age that would have been really a very short life. That weighs heavily on my mind. In 1918 tina and. Yes. Accident shall we say. The wife knew pretty soon after and she went to see her doctor. Where we were advised really in no uncertain terms. To look at. It was all in those few months all mixed up together and at the time we were still reeling from the shock and the implications of dealing with the diagnosis i could have been positive in which case what were we you know we were bringing a could child at that time to be an orphan if you to come into the world we didnt know how long we have or the child could have been positive as well as me in which case was it morally right to give birth to a child that i be you know suffered terribly i couldnt walk away from a man who i spose to love just when he needed me in worlds. And once we found out that i was ok afterwards. He. Realized that if i was going to be a mother it wouldnt be with richard and i just say with richard he said youre a perfect stream really loving and supportive wife yes shes shipping jenny. As. A source of Great Sadness to you base this being that you have to have children. A problem if. Anything you. Have to say at the time it seemed easy i didnt feel as if we had any choice sally lacey a thing. But. Martin bed was also thinking of starting a family his girlfriend was a nurse at the hospital where he received his treatment. Ive got the diameter of hemophilia pass and not on the don lemon or of a child of a not just infecting her but possibly possibly on to children as well so took the decision after about a year to split tilt so that hopefully she could go off and have a family of our own and thankfully she did and were still friends on facebook so you know and she seems happy which is good. Missionary very apt rebate and not such a. Very loyal dogs rottweilers are very protective as wild. Animals are one of the greatest comfort she can ever offer. Because she can have the lousiest day in the world when you walk in that house and the dogs are pleased to see you. Dogs know when youre in i mean i know when youre in trouble and. Its soothing. The. 2 attempts were made over 40 years to investigate the causes of this medical disaster in the u. K. But so far no one has been held accountable. The current inquiry is goal is to gather evidence the final decision about how to proceed after that will wrist with the government. I have very doubt that what happened was criminal i think the real question is to what degree was it credible i mean nothing bad better were talking about some form of criminal negligence and perhaps corporate manslaughter perhaps as high as murdoch and i think the inquiry can help direct in some way where those lines may in. Their criminal prosecutions have been brought in other countries and they have been successful particularly in france whether they will be brought in this country i suspect not the reason they wont bring them the Crown Prosecution Service wont be directed to bring those prosecutions its because its widely accepted that they would be successful and the only way they can avoid a successful prosecution is to avoid bringing it. The Public Inquiry is expected to continue for at least 2 to 3 years too late for the victims who have already died and to long for those still fighting for their lives every day morning our 1st witnesses. It was so bright. I was told about a year to live it was a hard time its so frightfully experience it wasnt a life. Really treasure exams anymore because we did a few years so we will actually. I dont feel i was it. Came out the. Tone swamps it down the house hard enough is no way should have to do it we just wanted to be with them. And i believe now is the time to justice. And all we ask for is recognition of our lives a meaningful recompense for the largess we have so cruelly stolen from us. Its going to be hard to reclaim freedom and were going to have to work at it but as people recognize from examples like. What repression Digital Systems need to. I hope people will start fighting. Saying we wont tolerate systems in our streets in our homes that cant possibly track what were doing. In the headlines this morning from the 24th of september germany is deliberately delaying a response to moscows request to hunt over data of the alleged poisoning of alexina in every possible way a permanent representative to the Global Chemical weapons watchdog tells all t. V. Coming up to astonishment that french maids could damn president for not consulting with the reimposing coronavirus restrictions across the country as covert cases spiral since the national. Good. Of canada clashes in the arrests in the better russian capital as protests sweeping