A form of hemophilia a rare and severe inherited disorder that impairs the bloods ability to clot the slightest injury a grain has an internal bleed or even just a bruise could cause a reparable damage im using around very engine ricker it is easy for me were going to. Every day richard inject himself with the blood clotting agent factor 8 these days its sterile and safe but in the mid seventys and early eightys a treatment like this infected about 5000 people in the u. K. With either hiv or hepatitis c. Or even both. Richard was a man and he had to undergo a series of treatments. Are very cross. Side effects mood swings and sweating in. Part. To take. Drugs. In the 1970 s. A new drug called factor 8 was released to using human blood it promised a much easier life for him a philly x. They no longer needed to go to hospital and could self administered the treatment by injection at any time or convenient place. But it had one fatal flaw rebelde which patients knew nothing until too late. One. Of your treatment might contain the donation of 4050000 people. A lot of product in the u. K. Came from america and one of the things we now know. The people giving those. People who maybe were in prison. And i encouraged to give that. To provide. This is a result showing that you were 3. Years and you werent. Where you told that you were being. Because. The drugs dont move and the brutes and ankle supports have saved me a few times because sometimes you walk and you roll your own call and if i didnt have these on i would have very bad bleed. From one girls. Like other hemophiliacs martin has problems with joints mainly his knees and elbows caused by internal bleeding. And was diagnosed within a full year about the age of 6 months old. Growing go up with him earlier back then for a parent it was a nightmare children theyre always running falling over banging themselves and i would have all kinds of internal bleeds and damage to my joints. Burden was under constant medical care 1st at Birmingham Childrens hospital and have your age of 17 he was sent to an adult facility. I remember being in the White America and my name is called out now the doctor doesnt even introduce himself his 1st words were hello i see youre a child people i didnt understand the significance of what he was saying because i was a healthy teenager a my words to him were all well thats a lot. Even goes on to say that your life for the next 2 years and then i said what do you mean by that. And he goes you got 2 years to live. Thats when it hit me. So we rode back to birmingham and got a letter that says on it that i was tested in 1900. Without my knowledge i was found to be h. On the positive but it also says that i found an old sample of my blood from a man to 93. 00 and i was positive then. But i could have been working on why i could have been sleeping with somebody and it would have more to for me if i have infected a girl what gives them doctors the wrong to play god. That im risk all the peoples laws why didnt they tell me. In 1981 i knew had previously unheard of disease was discovered in the United States acquired immune Deficiency Syndrome aids. In january 982 with the 1st hemophiliacs contracted aids in the us 9 more cases have been recorded by the end of the year 8 of which were terminal. Despite this Great Britain continue to import american factories. Are you proud of your all the new jump. Up on what if you call him a for. Ever jerry jerry j. J. Sure. My dad lived with him ophelia. Really did all won the game affiliates again is way out of the time it was kind of an odd thing for the song people to say here with area carpenter using these huge saws and swinging. Wood around the shop the things. You know that sick let me go i was. Crazy. Im very thankful he told those videos because its the evidence why memory doesnt have. Kids he was a father to me and he raised me and was doing everything a father should do. In towards the late seventys he began to use concentrates because that was with adults it was on him and everyone ill see use. May 1983 so the 1st reported case of the british hemophiliac contracting the disease. Appeared in the press claiming that factor 8 was a safe. In november of 84 he raised concerns about the products with his stopped and they told him this is just sensationalism its fine you know dont worry they convinced him to carry on using facts concentrate and then it was only shortly after that the his 1st choice v. Tests came back as positive. Things just very difficult a strain on the relationship with my mom you know theyd only got married and nothing their life went from being one of planning for the future to planning for the end. To see new statements about one of the worst things being the feeling of sticking that. Year with relation to. In the early days christian people dont get to see where you were lower. When we found out that he was positive felt such fear never felt little its not the fear of what he might so for its its social its everything its children its housing its your career is everything is gone it was something to be ashamed of even though we did nothing wrong hed done nothing wrong id bring a prominent lawyer locally and then one night i walked into a pole to play mama and the landlord just pointed out me and said you get out the pool tame ive been playing with but i also dont theyre not one of them taught to be for me ill help sick. And i thought dead. This was a classic case of. Well informed it. Doesnt take away the fact that it made me feel a lot rubbish. My dad lost his job among got sacked from her job they received hate mail phone calls making fun of. The stigma is incredible its this whole thing though if you had a view you a gay or you druggies or or some kind of what they sold to be an desirable person. By 9190 nights a verio. You had progressed to say its only opportunistic infections using off way slowly going through a horrible death. And. By the end of my 3. News news that. Jason evans founded the independent Campaign Group factor 8 its members of the immediate relatives of him affiliates who died because of contaminated blood products his Organization Provides them with legal help. I really only had one goal when i got involved in campaigning on this subject i wanted it to tell on the official record what happened could and should have been avoided i think after that point maybe theres room for that as support for people counseling and compensation and all these other things but i think from apes. So they want on the record that there is liability that all be satisfied. Because you give me too much made up what it is to is human and we said. Theres an awful lot of time i dont know but ill tell the most companies you know so i can i give them says you know. When i mean. Some people get all of those yeah no steven nobody goes from didnt you know just to say he is pro you know i call. Someone. You see him a little bit dont you i dont like kind of this. Little kid is he. Always stay in the im not going to your list. So do you. Know men because he. We can see richards perhaps most clearly in the book to commit to date stamped 10th of september 1976 so a very soon off to you would have been still saying it should go with him and we can see the whites have to talk to straight stick was the existence of the base could have its like to something you or your parents were aware of. Most. We cash cow and that is dari alfonzo mongery has died. Hes died and. Hes died on rocks one of the page service chosen paid change dard or. Busy at 11 years of age richard went to Trial Lawyers College a special boarding school for children with disabilities. Theres an n. H. S. Health center on the campus students could receive the medical care they needed and attend classes all in the same place. Its also the signs of the greatest concentration of contaminated blood cases that the u. K. Has ever seen. Ready busy what it. Is that you receive significant quantities of fats are a sort of prophylactic they. Are crazy about. Arent too real target joints nose mild left me in the right. For our Current System why that would give me consecutive doses day after day. Great britain will be selfsufficient in blood products and will guarantee their purity. Was the governments promise in the 1970s. When she came in that pledge in the name went away and they found a way around the. Importing this particular product. All these issues were very often at meetings of 1015 people but they were all held in secret no one was allowed to publish the the minutes of the meetings. The main beneficiaries of that secrecy were pharmaceutical companies. These companies had a huge financial motivation to sow these problems today. The fact concentrate market is a 1000000000 dollar industry in order for me to say our product is safer than this company they needed a trial date that showed weve used this product and its not infectious and in this country at least the doctor is. Often as consultants to the pharmaceutical home as there are numerous documents showing that doctors in oxford doctors in cardiff work keen to test facts or a concentrates infectivity on their patients to all hemophilia since directors. Initial production bunches may have been tested for infectivity by injecting them into chimpanzees it is unlikely that the manufacturers will be able to guarantee this form of Quality Control for all future batches it is therefore very important find out why studies in human beings to what extent the infectivity of the various concentrates has been reduced. The reason they use humans instead of chimpanzees was one because chimpanzees were expensive and essentially patients were free when they dont know their partner experiment we tried to speak to the pharmaceutical companies that produced factor 8 at the time over the last 50 years they have changed names and ownership several times and none wanted to talk about the contaminated blood issue now. What we know now is that the trolls are also conducting tests regularly and keeping records of liver function tests which made you think ok so what are they actually looking for figuring in a safe product or if you want monitoring how you live. Your pretend times or if you take a sales are you cd for camera with looking at racing. Out of the 80. 9 hemophiliacs who went to train those college 72 died. And people are still dying. Or from liver related problems to have a charge say. I actually feel guilty im still here i asked myself the question why am i still alive when you know 70 percent of the hang for that boy use. College. Ive had and. Im always crushing me so why me i why am i slowly being allowed to live when so many have and. The official claim was that the new medicines were safe the most emphatic statement to that effect was from Kenneth ClarkHealth Secretary under margaret thatchers government. I think someone that really has a lot to answer for as a minister is. 2019 and for the 1st time the u. K. Government agreed to hear what the victims had to say a Public Inquiry was opened in london and jason evans group factor 8 is taking part in it is finally happening its been. A long road and this is a train journey is one that i say him countless times over the last 34 years. Even before jason was born his father was aware of the deadly disease. In spite of the risk of causing on the contamination his baby was blown. Off and think about how would i have with my dad when he. Next year ill be the same age my dad was when he died. I think about if i used to die did not share that age that would have been really a very short life. That weighs heavily on my mind. In 98 you know i see there became. Yes. From our show we certainly. Were near pretty soon after unsure to see. Where we were for our east really in no Uncertain Terms not to care too much to go ahead. It was all in those few months so mixed together and at the time we were still reeling from the shock and the implications of dealing with the tired no sis i could have been positive in which case what we you know we were bringing the time to be and often if you come into the world we didnt know how long we had all the child could have been positive as well as me in which case was it morally right to give birth to a child that i be in a suffer terribly i couldnt walk away from a man who are supposed to love her just when he needed me most and once we found out that i was ok afterwards. He. Realized that if i was going to be a mother it wouldnt be with richard and i just say with richard he said youre a perfect stream really loving and supportive wife yes shes shipping to me. As it. Assists a Great Sadness to you base this feeling that you havent had children. A problem if. Anything you. Have to say at the time it seemed easy i didnt feel as if we had any choice sally lacey a thing. But. Martin baird was also thinking of starting a family his girlfriend was a nurse at the hospital where he received his treatment. Ive got the dial m. Earth hemophilia awesome not all of the don lemon or of a child of a not just infecting her. Possibly possibly on to children as well so i took the decision after about a year to split tilt so that i would fully she could go off and have a family of our on and thankfully she did and were still friends on facebook you know and she seems happy which is good. Missionary very apt rebate and not such a. Very loyal dogs rottweilers. Very protective as wild. Animals. One of the greatest comfort she can ever offer. Because she can have the lousiest day in the world when you walk in that house and the dogs are pleased to see you. Dogs know when youre in i know when youre in trouble and. Its soothing. The. 2 attempts were made over 40 years to investigate the causes of this medical disaster in the u. K. But so far no one has been held accountable. The current inquiry is goal is to gather evidence the final decision about how to proceed after that will wrist with the government. I have no doubt that what happened was criminal i think the real question is to walk degree was a criminal i mean nothing a bad minimum were talking about some form of criminal negligence and perhaps corporate manslaughter. Perhaps as high as my and i think the inquiry can help direct in some way where those lines made. Their criminal prosecutions have been brought in other countries and they have been successful particularly in france whether they will be brought in this country i suspect not the reason they wont bring them though the Crown Prosecution Service wont be directed to bring those prosecutions its because its widely accepted that they would be successful and the only way they can avoid a successful prosecution is to avoid bringing it up. The Public Inquiry is expected to continue for at least 2 to 3 years too late for the victims who have already died and to long for those still fighting for their lives every doing morning. First witnesses. It was so frightening. I was told i had about a year to live it was a hard time is so frightfully experience it wasnt a life. Really try for exams any more because you will be dead in a few years. I dont feel calmer it. Came out meals 20. Tome swan sit down the house hard enough there is no way should have to do that we just wanted to be with them. And i believe now is the time to do is to say. We are supporters of recognition of. Meaningful recompense the largest. Stories from those. 6 guys just by the natural survival guide. When customers go by you reduce the price. To now well reduce and lower. Thats undercutting no whats good for markets its not good for the global economy. Because you. Know his community there are people who believe that its ok to sell for x. Food on my table its really hard there are no jobs and you see that ive got kids that ask and as a parent. I can come up with arguments theres a lot of conflict in the game between the close of the conflict i would say revolves around money and most of them money is made. Close one on each other because he knows each other is Good Business the state of california alone makes 6000000000. 00 a year off to prison complex just to get some point in your life where. You dont care and one of my hair is a monster so your hair might anything. Italys Prime Minister resigned his and accuses interior minister. Of pushing the country into a political crisis. The u. S. Military announces plans for a new intermediate range missiles all to pulling out of the treaty with russia to test launching a new cruise missile. And u. S. Attorney general william ball removes the acting director of Prisons Office of the suicide of geoffrey epstein. Well for the latest on all of these stories you can head to. 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