Mom with aggressive ALS hopes to see sons graduate, asks drug company for help
TODAY
3 hrs ago
Meghan Holohan
In January, Lisa Stockman Mauriello, 51, learned she had an aggressive form of amyotrophic lateral sclerosis (ALS) with a short life expectancy. She had one dream: To see her three sons graduate before she died. Her eldest is finishing college, her middle child is completing high school and her youngest is graduating from middle school.
She had learned that a drug in clinical trials might offer her that chance and she petitioned to receive it via compassionate use. While the company said they couldn’t offer it to her any earlier, she recently learned they will give it to patients like herself this summer, providing her and her family a sliver of optimism if she lives that long.