Little Ella's weight loss baffled doctors for months - now her family want to raise awareness of a condition 'no one has ever heard of'
Ella Cooper was diagnosed with Wiedemann–Steiner syndrome at 22-months-old
Ella Cooper (Image: Kay Garratt)
The parents of a little girl who wasn't putting on weight due to a rare genetic syndrome now want to raise awareness after her diagnosis.
Ella Cooper stopped breathing after she was born at Tameside Hospital on New Year's Day 2019.
Her mum Kay Garratt, 38, said she was then 'never very well' as a baby, with doctors first believing that she had a dairy allergy.