Healthcare workers should be involved in research into long covid for more inclusive patient and public involvement, write Manish Pareek and colleagues
Patient and public involvement in research into long covid is key to understanding the condition’s impact on people’s lives, identifying research priorities, and ensuring that study design and methods are applicable to the people most affected by it.1 It’s particularly important to involve diverse groups of the population, including people from ethnic minority backgrounds and people with disabilities, to ensure that the research is representative and relevant. Examples are available of the various ways in which patient and public involvement has been integrated into long covid studies in the UK—such as actively involving people with long covid in generating content for the Symptom Burden Questionnaire.1
Researchers conducting national long covid studies have made a commendable effort to include a diverse range of patients and members …