Enhancing Collaboration for Patient-Centered Care in Rare Diseases

A panel of experts discuss improving collaboration between health systems and managed care organizations to ensure optimal outcomes for patients with rare diseases.

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Emma Ciafaloni ,Kimberlyc Chen ,Mary Pak ,Ryan Haumschild ,Peer Exchange ,Jessica Nance ,Collaboration ,Gene Therapy ,Managed Care ,Patient Access ,Healthcare ,Clinical Data ,Rare Diseases ,Treatment Options ,Ethical Implications ,Cost Effectiveness ,Equity ,Coverage Determinations , ,Clinical Evidence ,Patient Population ,Financial Sustainability ,Subscription Models ,Warranty Programs ,Performance Based Contracts ,Value Based Contracting ,Patient Advocacy ,Research And Development ,Innovative Therapies ,Communication ,Data Sharing ,Equitable Access ,Patient Centered Care ,Provider Collaboration ,Payer Perspectives ,Treatment Affordability ,Health System Strategies ,