Millions of african victims of this killer disorder. The and im told me online people, welcome to the program, people in sedan trapped in an inferno of brutal violence. Thats how the u. S. U. Monetary and coordinates of the country as describe the situation that was fighting continues between the sydneys army and the Power MilitaryRapid Support forces. The violence is restricting the flow of humanitarian aid and their growing concerns about atrocities taking place. An open source investigation from the non profit sensor for information resilience says the iris staff has been sending entire villages a blaze of these satellite images show this area in the west, off of the city of l janina in april 2023. Compare that to its charged remains as seen in march of this year and from the same city. These warehouses visible in april 2023 had been removed entirely. Nearly a year later, a the Rights Groups are wanting that the iris f, a tax amount to ethnic cleansing and genocide in west off for on x report contains images. Some viewers may find disturbing. Full year old yes mean has struggled to walk since she was shocked in the lake. She is from l janina and so dons west stuff full but hes growing up in the camps. The displaced people across the border in chad last year is fighting me at the home. Yes. Mean, fled with her family. But the rebel power miller trade groups, the Rapids Support forces caught up with them. A bullet toll through yes means leg and hes her mother. Why did i do her mother who was 8 months pregnant was killed and yes mean was left all alone. Some people found her on the road and brought her here on the road to the boat and we old suffered the Rapids Support forces killed and wounded. So many people like i heard a race and Human Rights Watch report accuses the Rapids Support forces and allied militias of carrying out attacks and west of full killing thousands. The report says this indicates ethnic cleansing will crimes and genocide. The power in military groups has been at will with su, dons army since april 20, 23 and 4 is a front in the civil war. Thousands of people were killed in clashes and as strikes, you know, fashion over the weekend. Its the last major cc and all 4 still under the sudanese armies control, the city is reportedly under siege and there is a Communications Blackout to the United Nations ones but fighting is endangering 800000 civilians in alpha and preventing aid from reaching the region. When millions of people are on the brink of salmon, that time is running out to prevent starvation and therefore, as intensifying clashes north, the Forest Capital l flasher are hindering our efforts to deliver vital Food Assistance into the region. The un has called the situation ensued on one of the west to monetary and disasters in recent memory. Age groups via that the violent seemed all full could lead to another mastic, a enforce millions more people to flee for their lives. Thats to beat them out to them with us and ali, a Legal Advisor at the wrong one and birth center for human rights, which i assume is also from dial 4 and survive to genocide the 2 decades ago. He joins us now from washington. D. C. Thanks for joining us on the program, which i assume now are you able to get a sense of the Current Situation in your hometown l fast you . I thanks very much for the opportunity and i think um the situation and the devices with it. Cuz as traffic we have been sounding, the alarm says lives here that uh when the rest of varieties started this evening. The city from all the parts from northern part of the city, from the southern part of the city. Im from the eastern part of the city and so now it is actually really the are a save and for the sort of nissan forces and, and other arm groups aligning with the Service Office really in, in, in a serious fight. Another 5. Sure. The already hundreds of people have been injured and killed in another 1st and last 2 days. And therefore the situation is really the best off they got. It requires an immediate attention from the International Community, right. What would the restrictions on access . How did you gather that information that in your case and you know, evidence for your reports . Well, i mean, no for all are report being relied heavily on, on, often Source Information that has already being got there by other, um, investigative journalist and other organizations organizations. But with respect to the ongoing comments, like, i think despite the blackout and the internet blackout, i think there is still a bit of communication between um you know, uh we can reach out to some of the residents but also 5. Sure. Uh. So they continue to report in terms of the incidents and, and how many people have been killed and attacked and the like. So basically, were able to access a bit of information really, we cannot get into what is happening at this moment in time. Right. And do you see any similarities between whats going on now and what you fled back in 2003 slots . Literally, as i mean, as we indicated clearly and ill report most of you out to us. It is that we see today committed by, by the office of both forces. This is a new brand of the magenta. We it right. And as so basically the crimes are committed by the same perpetrators. And i guess same victims cause we have the messiah didnt, was doubtful. We have 4 as ago and other parts of the 4. And so we will see exact same pattern, again of crimes and the way the r as of so you know, uh, you know, be, sees the cd, the way that the crime is that or prep or crated using way. But as a webinar for, you know, uh, the, you know, creating conditions calculated to bring about with the destruction of the, you know, they, they, they protected gross here was speaking for is a go on, must have a particular right. Now, the numbers from the ones that on a staggering 14000 people killed, at least 8 medium displaced, 25000000 needing as an aid. How would you describe the way the rest of the world has responded to this . Yeah, i mean i, i said uh said it before. Uh and then i think the, the way the International Community then of course the applicant is the, is the community and right. I respond to the trusted as in delford is, would it this graceful . There is no way the other way to describe this, right . And you see people being slaughter, we know the perpetrators. We know that enables us way. Countries. Some of them i actually even ask for going to states. And yet, there is nothing from the side of the International Community to harper to write a set down. The simplest thing to do is to cut off perpetrators from the financial flow that allows for, for, you know, for us to act as a continued. And yet we do not see anything from the International Community that is done so far. To prevent this uh, you know, this concert, i think this is april venerable genocide. This is not only my words, but by uh, you know, the words of other experts include informing you one of the issues. So i have, this is a preventive budget as ive even to eligible side of to thousands were, was preventable. And then again we, im a speaking of interesting community and deliberately, the reviews the, you know, to have to respond to this. And so i think it is within that and ignore genocide. It is an abundant genocide. What testing i need from the rhode island bag center and for human rights. Thank you for speaking to us. As thank you very much appreciated africas major cities are growing at an unprecedented rate by the end of the century. Its estimated the team out of the wells 20 largest metrology metropolises will be in africa. But one of the major challenges is how they can cater the for people from all economic brackets as an ongoing eviction scandal and ivory coast economic hub. John shows, development often comes at the expense of the poorest dw, see where to read reports from your football. One of the worst effective neighborhoods, as this is with thousands of people used to live, go to school and run their businesses. But now this on the rebel over the last weeks and months, the government of ivory coast economic capital has stated the neighborhoods of over 50000 people. Most of them overnight. This looks like the optimize of an earthquake or hurricane children and families. So thanks for the rebel School Benches turned off site down and personal belongings flying around every route. But its not. This is the result of the governments initiative to develop and clean up. Ill be drawn essentially remove and tell you a neighborhood that no longer for the image, the country, so you can only comp wants to put the tray. And you might be a key to use to live in a small house nearby with the 3 children. Now theyre out on the streets, its the 2nd time she and her family have been forced to leave the home. So i was only going to think out before we came here, we were poor, but at least we had some dignity. Now weve got absolutely nothing. We cant live like this, it was suffering. And the worst of all is that my children no longer go to school. My oldest, she used to go to school here, to demolition and stuff next, thousands of children with all the classroom. One school alone to community 2000 kids. This was my school where i studied with my friends dw, spoke to nearly 2 dozen people in several neighborhoods. No one received any financial compensation, no where they give an alternative shelter. The government off id be, john did not reply to dw use requests for comments and previous statements, just ethically its own. Suppose the safety risk proof lots and lands slides, but people yeah, dont believe thats the true reason behind that displacements. So lets take a gloom that runs a local and you that is fighting the evictions. He says the governments complaint is less about security and more about money. Im thank you for that. Theres one as well as the government says, these items are a safety risk. They already have Companies Lined up to want to invest that the for the money did we talking about the humanitarian catastrophe here. Thats all children are out of school, like this prostitution and banditry up. So you see the government did a bad job and while you disagree with nick, uh, i must Say Something of a over the last 20 years of each one has more than doubled in size from 3 to over 6000000 people. And like many african cities that continues to grow, but instead of social housing projects, these neighborhoods will be replaced with, with Health Promotion areas and the water pock amenities and lima into children. When that we never get to enjoy it very. And well just wait to see if go to give us miracle. The government of a beautiful sense to feel 117 neighborhoods altogether for the cities poor as they may soon be nowhere left to go. Youre watching the w news africa still to come. Its Savannah Savannah allies underway and african nations are slowly gaining a foothold if the o, p, a and benefits make their debut this year to ask a new comment as to the tile in aust extravaganza. And it might be fresh hold for millions of people affected by Sickle Cell Disease in the us. A new commercially licensed gene therapy has been administered for the 1st time to a patient. It could be a game changer in the fight against this disorder of unusually shaped red blood cells that can disrupt the victims blood flow is needs to Severe Health complications including chronic pain and organ damage, which can also be life threatening. Of the genetic condition is found around the world, but mainly among people with west or Central African backgrounds. According to the world health organization, 1000 children are born with a disease every day in africa, and the existing treatments can be read and expensive. But lets take a look at how one, uganda and woman is living with the disease and sharing hope. As when bob are on the below is a little go. The parents simply rotate off diagnosed with sickle cell anemia. 2 months to them. It meant that child wouldnt be around for long enough to be was that both of these to be they used to do day to soon so i do we you have a webcast. So for the day you have a clue. A mother even referred to as half adult to fibers, say she was left hating herself. She ran to day to day, according to natalie, and so they never thought of me as an important pass and by them, like someone who would grow up or is supposed to get an education to show that tips. Is that because they use, oh, my mother, the people like me dont grow money and we cant go to school or have children in the community. But now barbara, as parents are proud of that goal to because shes proving them wrong. Shes married and has 3 children that 1st born, a son is now 7 and the twin girls came last year age 37. Barbara is still a regular patient of them and by the regional hospital. And you can just remote east and highlands, but shes passing on her knowledge of how to live with Sickle Cell Disease. A personal story of survival is often the 1st glimpse of hope for nearly diagnose children, and then worried to parents. And shes also getting treatment. Hydroxyurea reduces a number of balance of pain and the need to blood transfusions all helping to overcome the stigma. We used to be saw frustrated, you know, you cant afford shows. They may reach like 12 yards. And they get so many complications on even you used to wishing on seeing these, these chains. So because of that trauma hydroxyurea as well, which indeed like it improves on the watch on the quality of life of these patients. Eugene therapies of a problem is when was approved in the us last year. Yet, despite the hope now also enough to trigger despair for single patient cost of treatment, the cost runs into millions of dollars. Joining us now is ill be i need to know do a professor of him apology and blood transfusion and the direct of the center for Sickle Cell Disease research and training at the university off of boucher good to have you on the program. Profess now looking at the emergence of new treatments for Sickle Cell Disease, surely this, these developments must inspire hope, considering how long the disease has posed a threat. Yes, definitely made key. Many people laugh quite excited. You know, just seeking that said death can be to achieve a 3 main for Sickle Cell Disease. Of course weve had the, these live born by root transplantation. You know, 1st on time for these treatments are not available to the major receive of people. So its hold on one site that day. So possibility. And then a lot of, uh, uh, you know, just bear, you know, from high budgeting countries because even the evidence based interventions that have been available for some time is not available to major retail for people. We know into adventures such as do by screening at the, you know, at pro flaxs for infection high drugs. You react truth means basically is that patient education. These are not ca available to major retail people so days full or one site even though, but its like most shots a week before. Feel, oh, when am i going to be able to even dream . You know, we just have to, uh, price tags of, oh so theyre accessing the visa inside of a shows like gene therapy, i need the bone marrow transplantation. One of the challenges you mentioned earlier was that of the cost when he comes to the treatment, but im assuming research as well. So what are the practical considerations for implementing these new therapies in a place like nigeria as well . So they go by gene, it directly initiative has actually been across the dream. These over the industry is facing 19. This is a network of people who could send that to these. The rep is when they become ivy level may not become available to the people with the right High Research people. So theyve not been able to walk, walk out very carefully, whats what the buyer has, what is it that is driving the cost and most of feeds has to do with manufacturing in the states or lies the facility that the g directly products. And weve been able to find that, that way you manufacture close to the taste of k e drive down to cost. So this has happened, this has been carefully walked side by different prices. And the, the tri outside has been the very low present college, you know, you know, in india and at a very low cost of Medical College in india. And theyve been able to do cartoon to arrive fee on that 55000. 00, which is the stock, right. It goes from the very high in the, in the media owns. And what has been done, you know, its uh, can also be wrecked in case i do you guys uh, uh, is also doing what canals uh, the possibility of doing the try a Clinical Trial. So Clinical Trial couldnt be one way of, of getting to bring it down because what pissed off k no manufacture. I mean, did you put drugs at the base of kit is one we, you know, to drive down because an at fault is going on in that direction. Is that kind of global consensus . A way that the, the world can, can address this collectively to make sure that there is a, you know, make sure that theres a more accessible treatments to, to the people who need it. Or the visual has established has been able to develop a film walk for a treatment of st as, as states as well. It makes it less, you know, that was we cannot just say ok, go all the way to gene therapy when the everyday experiences have insurance, we were things like education is locked in place. The majority of the business to it. Yes, we can aspire to do gene therapy, but what we know now works now should be available. You know, 2 major retail people buy for recess, high drugs, and you wrap a blood transmission. All of these things and then just education of people because you know, people cant do well. Patients cant do well if they know well up to my hydration, you know, do you every does reasons have vision and the has the, and, you know, the Health Care Work as know how to give that is any type of insurance. So we start, you know, from what is available now, and then we walk towards those that queue rates, if there are fees in the future. Okay. Professor. Okay, i got even under the head of the university of which is a center for Sickle Cell Disease research and training. Thank you very much for your insights. Yeah, youre welcome to italy. Now with this is addition to venice is international, odd festival or be an ally, kicked off with the theme. Fine is everywhere. Is an exploration of colonialism and the different realities of migration. The exhibition is created by brazilian adriano pedrosa, the 1st from the Southern Hemisphere to assume the prestigious roll thatd be an outlet takes place across the lagoon city until the end of november. For this valuable guesses, prejudice and belonging is one of the most talked about shows what gets his paintings use if you can. I can address the introducing of figurative thoughts and explorations that entity it to you just 1st appearance at the be and not as you can see from the to being on the, on the level 20 countries. Uh, let me present it, but all having a pub in, in uh for 54 countries inside off weekends. So its just the beginning. Its getting better, but there is a little way to go and purchase presence. This also seemed to the lens of colonialism call to goes to entry. Greenhouse was curated by 3 women of african descent autism. Monique had to meet on the historian sonya of us august and choreographer vanya got recreated the creole garden. The concept is the grill guard that refers to the lots to extended by in slaves to peoples. Its is very important to how we see the contemporary challenges of today, such as Climate Change or to racism. And many other political challenges because the crew garden, rather than being the model co teacher as the plantations, where it is a, a, is a form of cultivation that looks at diverse. That brings together multiple species, protecting each other and things of diversity. When cool in terms of cultivation, the republic of the need is also making it some hog really prevents this the amount. It was an exhibition, everything precious. So that child with that celebrate the spirit is the part of you. But women in the deep roots of food yes, im very proud to be a lot of develop good because i was very important. Important you have still actually on the International Stage by giving prominence to office, we have often been excluded from the great experience of the past. This being all the aims to add a new chapter to us history. Well thats if an hour be sure to check out the other stories on d. W dot com, forward slash africa on social media. Will it be with these pictures from this . He has venice being alice enjoyed the next time i found the, the, the, into the conflicts own. With tim sebastian. As the war and ukraine grind on the neighboring voltage states watch anxiously from the ringside seats, pressing the west to increase a kia and make sure russia dozens with my guess this week is last week, is 5 minutes to place you on this current. And hes clear nature as to optics, go conflict in 30 minutes on the w to the point. Strong opinions, clear positions, international perspective, every shadowing of rushes, military leadership suggest brewton is digging in for a long range and plenty to harness for the russian economy. To do so. What does this mean for ukraine under, on board mentioned losing ground in the northeast. Join us this week on to the point to the point eastern in 90 minutes on d w. The one of the main kinds, oldest ambitions could be within reach. What do you see . It really is possible to reverse the researchers and scientists all over the world. For you know, race against time, they are peers and rivals with one daring goals to help smart nature. The more likes watching it on youtube, Dw Documentary world of free speech, free press access to free information for every stop dreaming. Im next to take action, dw global media for 2024, a bunch of any register. Now, lots dissipates from all over the world. Im ready to share their solutions and to shape tomorrow and join us and register now for the dw global media for in 2020 for the the this is the, the news light from berlin, russia steps up. Its offensive a ne, in ukraine. This here is what the situation is both chance is turning into at the very moment dining here is a residential building. It was struck by a glide from just about 20 minutes ago, all corresponding witnesses, the devastation unleashed by russia and how ukrainian so just try to bring people to safety. Plus that important entry agent being pledge a new eater off off the ship between russia and china as they accuse the yours of sewing chaos around the world