Discover new adventures in 367. And explore fascinating World Heritage sites. W World Heritage 360 to get enough now. It is joy she was extremely challenging as the doctors had predicted that he wouldnt survive the next 48 hours. When he was 5 i had a bicycle accident he survived but had broken his neck today 13 years later caring for yasha still an all consuming task for his parents. Sunday breakfast at the barons familys home in castle germany its a given that joshua sits at the table to hes almost completely paralyzed and needs artificial respiration but he still aware of everything happening around him. Do you feel like having a bread roll. Ok in that case ill put one aside for you before theyre all gone. When he blinked his eyes it means yes raced eyebrows mean no. Thats how you joins our conversations you like to participate and so we all communicate with you while doing things we always need to ask you things like now yes youre doing a great job you give very exact answers as to what you like and what you dont like that would of course sometimes i can get it wrong and you think oh no i really dont want this at all but then youre always very clear and moving your face or narrowing your eyes. As like that. And those are the nuances that we as a family are familiar with. And that signify somethings not right and we need to ask you again. And. He will be elf do we usually get it right when we ask you something or. He said yes that was the ashes opinion on this. Yes has cognitive skills have not been impacted but he cant breathe also while on his own and can only see well close. The tasks concerning yes just care are divided amongst the family members his father marcos is responsible for us food for instance today yes what like right bread and cold cuts. I just like your sheets pretty much the same food that we all waited too long there is bread in the morning with cold cuts or cheese. For lunch eats what we eat but prepared in a blender. And except for you it used to puree proved. That. Using a tube the blended food lends directly and yes my stomach yes a scare is a full time job for the family taking about 40 to 50 hours a week sometimes its even more when the care person who is usually with yasha around the clock cant come in. Yes i was a regular healthy boy until the age of 5. Thats when he had a horrible bicycle accident he didnt see of beriah and broke his neck. It changed the familys life from one moment to the next. Since i mean this is one of the last photos where our world was still intact the high life the horse photo and the once again dealing with this was more than extreme it was that as the doctors had predicted that he wouldnt survive the next 48 hours and so we had to deal with the concept of probably having to say goodbye to a little look at the 1st week we actually spent planning his funeral with him and him. On this not so ive come down on 2 weeks later we were told that we should start with early rehab training wise because it was apparent that he was not doing what the doctors actually expected he didnt die with every leaving it became clear that he wanted to live on wanted to take this on. And we faced the same question a challenge can we take this on this type of life and it was hard because we had no idea what was coming nor what we were meant to do with how it would be because im for me the worst thing for me was to not hear his voice anymore it was almost unbearable to imagine i would never be able to hear him speak again and i was scared that i might forget the sound of his voice back then there werent many possibilities to fill mobile phones and such and then do you remember we found an old film camera and when we played it we heard his voice and he said a load that in my inside yet exactly when we had found a moment in time and we were so happy i guess a friend of ours had filmed yasha at an exhibition the week before the accident and i will feel i can still recall yes his voice to this day hes an excel file on. The small. Its really helpful even today to see it and to know that hes a patient modest person and a really lovable little rascal because instead of whats to be it and is here at the accident site sloping bicycle lane back then there were still several of these guard railings here im over here there was a guard railing here and then another one over there they were staggered to prevent cars from passing through it. All to people on yes i hadnt seen the god railings and knocked his head against them theyve been removed. Kynge can hear him i dont like coming here it really looks so harmless and yet its the place that changed life and ours too as a family. Back home again to siena notices that theres a leak in the oxygen storage tank an empty tank would be life threatening to yasha. Yes the displays already had read so even though its sunday today we wont manage until tomorrow we urgently need new oxygen on the following oh my farewell. To tina is responsible for all organizational matters its quite a lot. And i often notice that others next to me are already quite anxious and upset and i just dont have the time or strength for that i just realize that i need to keep calm and keep on functioning even if its sunday and i just like to sit down and read something and relax for a moment instead im busy organizing it all for the c n luckily the new oxygen tank is delivered 2 hours late. The next morning carolyn lee and nationals father prepare him for school it can take up to an hour for example a brace that stabilizes yasha spidy needs to be fastened. From the floor. Using a special machine yasha is then transferred from the bed to his wheelchair such equipment is expensive the cost is covered by health insurance. At 18 yes he is now in his last year of school and school 2 hes always accompanied by a care person one of the most important tasks is regular saliva suction and always making sure that yahshua is ok in order for him to participate in class just like the other kids. In the 1st class is math teacher to almost try is teaching the students fractional arithmetic due to yes impaired vision he needs to see the math problems up close. Look weve got 11 course here. And we had 4 in total as i got you i got a lot of ideas over the dog learns just like the other students did our little bit of a big obstacle they were simply certain things to consider to be had the lessons a little bit differently about some of these are power example but this blackboard which is used to depict everything very clearly and vividly with a less im childish printouts of. Why isnt school his mother christina works in her own Organization Called intends founded by marcus and herself she advises other parents with children in need of intensive care despite caring for her own child nonstop working was important to christina whos trained in political care but shes been criticized for this. Stuff and he definitely but i think that some people dont understand my motivation why im active in this field which is also a part of my life but it was precisely that when i was merely an affected mom i often feel powerless helpless especially when things werent going well and now working in this field to be able to look for solutions that really appeals to me not to use them and. Why their mom is at work sisters clabber and feed our busy in the kitchen 10 year old glad i can cook some dishes on her own. I can well the kids i know they dont actually cook themselves the parents always do his but i also cook sometimes when im back from school and make either mashed potatoes or noodles with tomato sauce and then i go up stairs and tell mom and the others that the food is ready. To shed. For the sisters its normal to help out they dont feel disadvantaged through yasha. To here for thought us. Of course there are times when we cant do everything we want maybe we cant go out with friends because yeah shes just coming back from school or Something Like that. Thats out there sweat and i think thats not different from other families with parents who arent around all the time where he filmed one for 3 of. My fizzy dozen or and our parents always make sure that were treated equally of those i love every problem is a dress code and you dont. Think you can call that being disadvantaged all of this government from. Coming up with fresh. Yes our returns from school plaid our shows her brother what she did in school today. Actually look it says butterfly workshop here. On. C. N. N. And we also had to write some stuff. So i think. Its worth it and in between we had to read some stories. In the evening the 3 siblings want to watch a sears together the family is currently thinking about whether yasha could move into an inclusive flat share after all hes of age now but everyone is still happy to have him around no matter the hardships. Believing the way he was after all. And why are some sleep. How can we test harness their images. And why do we find the sound waves song with lots a lot of traffic analysis from school. Who want to play. To try to. G. W. Workers rivers of scenery and nitrates leeching into the ground water. Agriculture in germany. Is this really what you want. Who represents the peoples interests at Committee Meetings and true is actually pulling the strings. Arming policies for sale how industry and the agricultural lobbies call the shots in 45 minutes. Im not laughing at the germans because sometimes i am but most are laughing with the to me but i havent been deep into the german culture of. Nudity but take this drama day out to you because its all that out there know im rachel join me and you think everybody got the coolest. Welcome see tomorrow today this side show on t w. This time we go to the beach where surfing physics teacher explains what waves are all about. Well hear from an acoustics experts why the sound of waves is so relaxing. And. The waves can also have huge destructive power and scientists are trying to