Costner liquid tot today im going to talk about Cystic Fibrosis it is easy many of us dont even know it think about and im going to need a little piece of paper suffering from Cystic Fibrosis and im going to meet his Pediatrician Dr baka here at the his clinic in the from being in really welcome. Because. Its a. Little. Due to medical progress and the integrated care and Specialist Centers people affected by Cystic Fibrosis nowadays live a lot longer and better than it used to be and theres new hope on the horizon. Cystic fibrosis is a genetic disorder it thickens our mucus and clocks up the body even our organs you cannot cure Cystic Fibrosis but you can treat it but early action is essential. A blood test that can make all the difference the doctors want to know whether baby leon has Cystic Fibrosis the test is now a standard part of the screening procedure for newborns in germany it can also reveal other metabolic disorders and hormone irregularities. Has been added as a mother im really happy and grateful that we have this test here and there because the third any problems and of course we certainly hope there arent they can at least be treated straightaway. Then that can and. A few drops of blood are sufficient to identify Cystic Fibrosis which is caused by mutations in a single gene. The. Cystic fibrosis affects multiple organs some patients go through a lot of suffering but its unfortunately not something you can see right away just by looking at a newborn and. Cannot recognize that a baby has the conditions even though its already developing at this point were causing irreversible damage to the childs lungs and pancreas and of acting as development. Confirming a diagnosis of Cystic Fibrosis requires several tests if a bio chemical analysis turns up positive a d. N. A. Test follows. Screening for. Screening shows right away shortly after birth whether the baby is healthy or whether it needs to be referred to a Cystic Fibrosis center for treatments and. Thats a huge advantage as it means any children affected who have the condition then receive adequate treatment right from the start before it causes major and lasting damage to their lungs or other organs tom is six he wasnt diagnosed with Cystic Fibrosis until he was three and those years have left their mark on his body. For too pleased to see her leash when she. Lungs will certainly have sustained damage that we can no longer reverse all we can do is give him the best possible treatment now so that he doesnt deteriorate further. Certainly worse off their children who get screened at birth. Because of the Cystic Fibrosis toms lungs and intestines are constantly blocked with mucus his parents notice that their son stomach was bloated and that he had gastrointestinal problems as ever seen he would go to the toilet anything from seven to ten times a day if he had really bad fatty stool and tell me aches he was still wearing diapers and they were always so greasy and smelled really unpleasant we knew something wasnt right. In the. Home also had regular lung infections that had to be treated with antibiotics the boy wasnt growing much either or putting on weight. Of others and us walk he was tested for all kinds of things but not Cystic Fibrosis we ran from one doctor to the next no one believed us everyone had a different opinion but nothing house would. Finally at the University Hospital and heidelberg their son was diagnosed correctly it was a huge shock for his parents for the rest of his life tom will have to battle the thick mucus in his lungs he needs to inhale for fifteen minutes three times a day physiotherapy helps release the thick mucus in his respiratory system so that he can cough it up more easily the exercise also improves his physical fitness another positive factor in fighting this incurable disease. Tom also needs energy rich food malnourishment is a constant looming risk. Can i have cream please. Enzyme supplements help to support the function of the pen koreas so he benefits more from his food and the measures are working tom has now put on weight. And hes growing again. All of the treatments whether inhalation physiotherapy enzymes or high energy food have one thing in common the earlier they start the longer the patient can expect to live so screening newborns can help the probability of baby lisa and having Cystic Fibrosis is one in two thousand but for those children who are affected early diagnosis can make all the difference. I hear the heat is clearly in the building in berlin and im talking to the doctor the specialist in Pediatric Medicine and youre actually europe. And ive got a family here with new to do suffering from Cystic Fibrosis and speaking to his father marcus things and me and he talked about how we just saw a report about the new screening whats your opinion on this. In general newborn screening is a very good idea and a very useful program to detect serious disease this way early so that specific treatment can be instituted and this makes a Better Program assistant i guess theres evidence for that terms of the respiratory involvement but the nutritional state its been proven in other countries that have had experience with newborn screening for many years already in the traditional state really is better in children. Were detected by newborn screening we could do with us suffering from Cystic Fibrosis because youre the father of when did you first realize that this is not an ordinary cough and an ordinary flu a little bit went to Nursery School in the first week he went to or four times and shortly after that i started to have home. At first like you just had a normal cough and runny nose but then the symptoms didnt go away they just got worse they got so bad he couldnt sleep through the night he had coughing attacks and couldnt sleep neither could we. So so you ordered a switch test so this is a normal diagnostic procedure i guess thats the traditional and the most sensitive tests thats been developed more than fifty years ago. Thats also the test thats being done for confirmation of newborn positive newborn screening and with this. We can differentiate and we can detect the vast majority of Cystic Fibrosis patients so what is going wrong in the organism in patients with Cystic Fibrosis the basis really of Cystic Fibrosis is. An alteration in the genetic code and this leads to a defect in salt and water transport across. Especially so that are responsible for secreted. Water into the lungs for example the bronc also in the digestive system now because after the diagnosis a lot of things changed in the family so how is your life now this much of the first you have to deal with it mentally not just as individuals but also as a couple because the disease and its effects hang over our lives every day and suddenly your life is about focusing on this disease. Not in negative ways. All content all to be learned the more involved you are he got bigger the difference it makes on the life of your child. You know you can help them feel better. So thats why in dealing in life youre focused on the disease because. So whats the most important thing in the therapy of Cystic Fibrosis one important thing we heard is the administration of pancreatic enzymes to help compensate the problem in the digestive system. So treatment is directed towards the lung involvement with medication to help loosen the secretions to help fight bacteria in the airways if there are detected and an active lifestyle and measures of physiotherapy to help clear the airways from their creations so its not only the doctor and the medical team who helps to pay. Patients can do themselves like in the case of the lead screw. Taking advantage of. Felix cool luck regularly has shiatsu treatments he suffers from Cystic Fibrosis and has found the japanese mass technique very helpful. For my values are really not that good because of i have terrible coughing attacks in the morning and shots are really helps me to relax fully that in turn has a positive effect on my breathing that youve also shiatsu involves applying very gentle pressure physiotherapist tries to move from the center of her body outwards but ensures the entire process is controlled and smoothed she was and she answers a form of therapy that involves both contact and movement and. Its about stimulating the energy in the bodys meridians the same meridians that we know from acupuncture its holistic it addresses body mind and soul and thats quite different from just trying to make symptoms disappear from tom vick. Felixs on the waiting list for a Lung Transplant four times a year he has to go for a long test the average Life Expectancy for Cystic Fibrosis patient is around forty felix is already forty eight. Yes i now breathe it out out out as long as you can you know thanks to progress in medicine people with Cystic Fibrosis today are likely to live a lot longer than they did in the past alternative treatment methods can also help improve quality of life. And what but to one of the big advantages of this kind of complementary medicine to suit his that it allows the patient to do something for themselves as person it gives them the feeling that they can have a positive effect on their condition and can actively improve their health. And thats important especially with chronic illness hes also got a questionnaire come. Felix west by shiatsu he says the treatments have made a huge difference in how he feels. You have to experience it for yourself to understand it totally relaxes you but its also a vitalizing at the same time. Despite his serious lung problems felix good luck has found something that helps him to be optimistic about the future. Why is exercise that important and Cystic Fibrosis being active have a lot of positive effects helps clear and cough up secretions if a better muscular helps them get along in everyday life so our advice to adopt active lifestyle from early age on like ludo is an important part of our regular recombination course if the patient and what about physiotherapy. Because if therapy isnt one cornerstone an important part of Cystic Fibrosis treatment patients have like a ten to fifteen Minute Program of breathing exercises that they do for themselves every day lets take a look on a very difficult topic on prove now this is the page let like a little what do you how long may patients right now with defenses the prediction for newborns that are picked up are diagnosed today of the Cystic Fibrosis is that they will reach about an age of fifty average would why variation from a thing as a whole of its year old its because our all this patient has turned seventy two just recently she is still being cared for on our pediatric ward and is very happy with the care that our Pediatric Team delivers to her but shes an exception so lets on the horizon when you think about to command theres a chance at the real the cure some years ago theres been a revolution with a new type of drugs that can be administered do you know type specific so depending on what kind of genetic defect the certain patients have they do not only type symptoms like pick secretions but they sort of repaired the consequence of the genetic defect and help cells to restore their water and salt transports and they have had Great Results at the moment only for a small group of patients with certain types of genetic defects but there is a lot of new compounds in studies that will probably be released in the next couple of years so theres good reason for patients and the medical community to be optimistic i think it about all the interesting information and i will go and visit the family again. All. Right so im back with the family now how do you see new to his future you know we dont try to look too far into the future we hope that he stays relatively symptom free for as long as possible we are a little worried about puberty because weve heard that can be a difficult time but trusting in modern health care here and here are steps made there in the last few years we might actually see the day when it can be healed and it was and whats your advice for families for side with a certain disease. Well look what if you have to have a positive attitude about this disease that can move mountains thats the thing that helps a family to break through and achieve what they have to achieve thanks for sharing the story with me and i will continue with. My. Interest in our topic for you. Would you like a chance to win a fitness backpack just tell us your favorite home remedy for treating stomach aches colds all stress send your ideas to in good shape d w dot com by march the eleventh be sure to write household remedies in the subject line we look forward to hearing from you. Im very curious what you. And i guess you are very curious about topic and here. Exercise is good for us. For right and you will be surprised that people will tell you dont do it. Yourself you know loves to jog she used to go four or five times a week but while she was living in south africa last year she suddenly developed problems as it started again when i had drug and while i was out jogging i started to feel pain below my right knee it was directly on the bone like a heavy eight. On longer runs it started to hobble me and sometimes right after i finished jogging i noticed it was slightly swollen. And. During her teaching internship in cape town she was always on the go taking trips and hiking she jogged home from School Every Day despite the pain. I mean saw i had running through the pain that i tried to ignore it thinking it had something to do with me playing so many sports and that it would go away on its own. But the pain persisted even after she scaled back her workouts. Back in germany she went to see an orthopedist who suspected a stress fracture. Or stress fractures or socalled fatigue fractures or a kind of gradual fracturing of the bone through too much physical exertion or exercise can damage bones and that can lead to stress fractures and we do. Have these fractures are not the result of falls or accidents they develop as hairline cracks felt for example as a bump on the leg its important not to underestimate such injuries. If an athlete continue to exercise through the game they risk a full bone fracture. The pain is a warning signs here discontinue exercise and seek help. And x. Ray of yosef in his leg confirm the diagnosis of stress fracture oh. If she had only jogged to war three times a week this almost certainly would not have happened. But a strain of the exercise was too much and in her case that led to the development of a stress fracture. I think another factor is that use of finneran almost exclusively on asphalt that can also lead to excess strain on bones the doctor ruled out other possible causes in her case such as osteoporosis or malnutrition stress fractures usually occur on the lower limbs and rarely require casts or splints they mostly heal on their own with rest after a few weeks its possible to start swimming or biking again for josefina the diagnosis was a shock how to make sure move on not bellamy meant i was in neys this could happen to someone whos only twenty three and totally fit ive always done loads of sports so i had a certain level of fitness and thought this kind of thing wouldnt happen to me you need. After a two month break from sports josefina a stress fracture was healed. Now shes back at the gym where she does Strength Training and bike workouts. Principle for as im super happy to do sports again because its really important to me after working out four to five times a week feel he is it was really strange to do nothing it was unfailing for someone whos always active and on the go. And changed. To me so its good to be active again and of course im happy that theres no long term damage and now i can work out without any pain i need to move into it. So dress. And there are your workouts yourself in there he shared has learned to reduce her running a bit in favor of other sports. Yes hello oh yes listen to me forty two percent. With nobody coming to the rescue thirty percent chased by an evil character and twenty five percent are in mortal danger what no im not talking about the team of in good shape im talking about nightmares every one of us has them but not every night but if you chase every single night then. Every night the same recurring nightmare. And more that im going to be murdered and have been murdered. Every night. Would feel the panic rising knowing the dream would return to the front. In the night i was already dead the murderer was in the room i could see him and feel him there because terrible pain i didnt feel the pain of being murdered i was already dead the pain was knowing the killer was in the room and i couldnt do anything about it was. Killed in her dreams almost every night that was the nightmare yes me has suffered since childhood for decades the architect was afraid of what the night might bring she was scared to fall asleep. In mine at the high point id work one hundred forty hours a week sleeping two to three hours a night or not at all social often order got as a rule i wouldnt sleep at all only for two nights in november and december i generally be unable to sleep at all or hardly at all. There was no escape nights became days and days were torture she was among the five percent of germans who suffer from recurring nightmares. Desperate to break the cycle guess maaco went to a trauma clinic at the university of frankfurt they offer help for extreme cases. When i get off that i need dreams like these cause people to be less effective at work and prevent them from taking care of their children as well as theyd like to but were talking about at this point goes beyond the realm of a normal nightmare. There is a therapy designed to help the main idea behind this method involves not repressing the dreams during the day or at other waking times and. In fact it entails doing exactly the opposite. I write down a dream in my waking state i imagine it playing out and how id like it to go this way i can visualize the outcome that id like to see and this experience of being able to change the dream and take control of it leads to being able to actually do it during sleep. The therapy is a process that takes at least three months to complete this includes time for setbacks. In my natal port and thats it my therapist was very patient with me practicing with me honey guiding me through punny choking fits when they occurred and then in the morning i started using it as a visualization process to rewrite my dreams and he wants me to order mine and. This method a visualization and imagination allows the patient to influence and thus become the director of their dreams. Can a mom initial what i know doesnt frighten me as much as what im trying to avoid what im running away from taking and we give people techniques that they can use to deal with their nightmares. And that that includes future episodes that occur after the therapy has ended their thoughts of a man past we help patients to recognize the triggers so they can improve and change their lives without seeing a therapist or know nothing and after a five time to a point and. Now three months after her last therapy session has me because its quality of life has improved considerably. Movements which is almost impossible to describe how much my life is improved after suffering for decades even. Now i wake up in the morning feeling relieved and i can even laugh in my dreams. Thats important day see you next week and until then lets all try to stay in good shape. Cooling. By endorsements shall go like to get your Favorite Team swing got all the best goals weve got all the action dont miss going to sligo right here. Is the home of german football here the experience of every match the books along with. This weeks. Fashion. Takes us to the alps. Maybe just a stroll through the streets soaked in strong. Your romance thirty minutes on dublin. Go into an official estimates more than one point two million venezuelans live in colombia legally and illegally. Already eckel all id return to vast lana. To visit friends is that i dont think id ever go back there to live you know what i live there again i dont know so im not sure. Bearing witness global news that matters the story made for mines. Mention being bored because. Youre a liar come prove you exist. You want to look at the new school. You want to be useful but on the love. When youre sick the doctors know when you fall in love they wont mind you dont have children for fear theyll be invisible to you assure. You have no human. When you die theres no proof of the ever exist. And every ten minutes. Someone this is. Ten Million People in the world the stakes they have no nationality and made up alone and. That everyone has the right. Everyone has the right to say. The audience. This is deja vu news live from berlin and i go they were up hold for syria as the u. N. Calls for a new cease fire in about a minute votes on three days of delay it comes after a week of government shelling that turned into walk the u. N. Chief called heaven on earth also calling off. People take to the streets in moscow and memorial larger