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It was on a national stage that Hannah Deacon learned that her son, Alfie, would become the first patient in the United Kingdom to receive a permanent cannabis licence.
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Brexit, medical cannabis and the children abandoned by the U.K. government Back to video
Alfie lives with a rare form of epilepsy called PCDH19 and was experiencing upwards of 500 seizures a month as a child. Anti-epilepsy drugs had little effect, as did a ketogenic diet and immunoglobulins. A steroid injection reduced his seizures but also produced side effects like mood swings, restlessness and headaches.