Arkansas baby with rare condition defying the odds: 'It is a miracle.'
An Arkansas baby with a rare genetic condition is defying all odds thanks to his doctors and the world's most expensive drug.
Author: Michael Aaron
Updated: 11:11 AM CDT May 6, 2021
LITTLE ROCK, Ark. — An Arkansas baby with a rare genetic condition is defying all odds thanks to his doctors, the world's most expensive drug, and a move to Arkansas that saved his life.
Ollie Hurst is a seemingly happy and healthy 9-month-old.
"He is just so calming. He's strong," Elaine Hurst, Ollie's mom, said.
While sitting on a couch at UAMS with his mom, dad, and big brother, Ollie giggled and squirmed as most babies would.